this antibiotic might just be what has been needed to remedy Parker’s latest bout with the Creeping Crud living in his sinus’.
His sats the last few nights have been much better. Not as good as they had been, but at a level where I’m not panicked to close my eyes here and there during the night.
I took a few pictures to document the hopeful renewal of Parker’s health. Keep in mind that the room was totally pitch black when I shot these. I had to take what I could get with the hopes that I wouldn’t wake up Parker…..or worse, Reed. Trust me. I do whatever I can to insure that Reed gets his beauty sleep. Makes my life MUCH easier. 
Right before we put the CPAP on Parker
After we put the CPAP on…….
And many thanks to my sweet friend Chris and her little guy Arman for the jammies Parker is wearing. Arman who is a year younger than Parker and twice as big…..sigh……lovingly passed on his outgrown jammies to our guy. We have to cut off the feet of all of Parker’s jams and then hem up the raw edge so that we can run his O2 line down the back and out the foot PLUS we need the foot free so we can attach the Pulse-Ox monitor to Parker’s foot. Each night when I get Parker ready for bed I think of Chris and Arman. 
The Pulse Ox monitor has been looking pretty good the last few nights. The top number records Parker’s O2 levels. We perfer it to be over 95, but this is way better than it has been. The bottom number records his heart rate. Perfect for Parker is in the 60′s. But again this is so much better than the 120′s that it has been in.
Parker goes in on Monday the 25th for the sedated echo. Afterwards we will have the Chloride or Sweat Test performed to check out the possibility of CF. In my heart of hearts I don’t believe that CF is going to be an issue for us. But it will be nice to be able to rule it out.
So, with a little luck, things just might be starting to turn around.
He is so absolutely sweet! I am still praying hard for Parker and I so hope some good news arrives for you!
What a sweet sleeping baby! I love the feet sticking out the side rails. He looks very comfortable! You must be a pretty good sneaker because it doesn’t look like he was disturbed.
I’ll be praying for Parker for the tests coming up!
annb
I found your blog yesterday, from the Utahkids site. I’m the one that lives in Missouri now. I love your blog. My son is also on oxygen (although only at nite now,unless he’s ill or fevering,now that we are in MO and at sea level).
You son has won a spot in my heart, what a darling boy. The sweat test is the easiest test ever. We’ve done it twice, and luckily both times it came back negative. It doesn’t hurt and is so easy.
We hope everything goes well. We’ll be praying for you all.
What can I say, I love little boys with cannula’s and tender grips. (I wish I could put my son’s far on his cheek like you can. If I don’t put them near his nose he rubs the cannula above his nose or rip it off completly).
Good Luck
I am so happy to read something positive! Tammy – I just want you to know that I always keep Parker in my prayers! I am saying lots of extra prayers for him and your family right now as you try to sort all of this out…. You and Reed are such amazing parents and I know that Parker knows how much you guys love him! I am sure it keeps him going every day!!!! Give that gorgeous boy lots of hugs and kisses from me and Lily!
Love,
Lisa and Lily
Great photos, I love the one with his foot in the rails. Im praying for him today. May i ask what the CF stands for?
CF is Cystic Fibrosis, my guy had that test too.
Praying for all to go well today. So glad Parky is coming around.
Hi Parker and family!
Sending our love and get well wishes! You are absolutely the most precious little boy. We are praying and praying for you and hope you upcoming tests turn out favorable.
Tammy and Reed, sending prayers as you once again have been challenged with more medical issues. You both are incredibly strong and are a testiment of strength to all us parents.
Hugs!
Laura, Gracie and Family
Hi Parker!
Sending our love and prayers that you will get well soon. You are an amazing and precious little boy! You continue to fight and are a testiment of strength to all of us.
Tammy and Reed you both are wonderful parents, and I’m feel privileged to be on this T21 journey together. Our children are truly amazing! Prayers Parker gets favorable results on this upcoming tests.
Hugs, Love and continued prayers!
Laura, Gracie and Famil
How precious…a sleeping Parky fix.
I am so relieved to hear better reports on Parker’s health. I’ve been running around like crazy and now I’m trying to catch up a little blog reading.
Know that Parker is remaining always in my prayers. And I won’t forget about our deal in July.
I hope Parker is continuing to get better. You are in our prayers.:)
Kaylene
Fingers crossed and prayers sent!!!
LOVE those lil piggie toes! Still praying!