For about 30 seconds yesterday Reed and I held on to the hope of being able to have Parker home for Thanksgiving. Alas, reality reared it’s busybody head and we resigned ourselves to Parker spending Thanksgiving in the hospital for the 4th time in his 7 years.
Yet again we’ll be expressing our Thanks with a grilled cheese sandwich and a giant Dr. Pepper over ice. While they may have redecorated the Rainbow cafe here at Primary Childrens Hospital, the food still stinks.
It seems as though every time I turn around someone is coming in to tell me about a new flavor of yuck that has grown out in the vast array of cultures taken from every orifice Parker has, both God and man made. Today’s surprise? Pseudomonas. (If that’s not spelled right blame the RT. I had to ask him how to spell it.)
This is where I’d usually show you a picture of our Brave Hero. Except you’ve got an important meal waiting for you tomorrow and he’s all covered in snot.
You’re welcome.
Due to a particularly ugly cap gas result there was talk of transferring Parker down to the PICU. Better to ventilate you, my dear. Luckily, an especially talented RT suggested that we set up a machine that could monitor Parker’s CO2 out put in real time. Even luckier that machine showed that Parker was indeed doing a grand job of blowing off his excess CO2 and we are still stilling here on the I Pod in the room that screams PLAGUE!
You can’t see it in the picture, but in the tiny lettering at the very bottom it suggests you burn your clothes after visiting.
Twitter: nehimomma
says:
yup you spelled that evil word right.
sorry!
it sucks…not surprised…just about everyone with a trach is gonna have that bug.
hope you knock it out soon.
Sarah
Sarah recently posted..Long Time No See….whatz up with NEHI?
Twitter: MommaHopeful
says:
Praying for y’all… grilled cheese is usually the choice of mine as well. It seems the safest.
I’m thankful that you are in good spirits, have a Parker to hold and love, and are being given good care.
And for bleach.
Heather recently posted..The Cookie Queen (and a Jack update)
Praying for God’s grace and mercy, sending you some long distance love, Tammy!
Michelle Halcomb recently posted..This is the story of a girl
Got nervous about what was happening since our last contact so am checking in. Glad to hear the CO2 is better. This too shall pass. Hugs.
Oh crap…I was hoping to read you were headed home. Still pumping out those prayers and sending you a big cyber hug with wishes of a Happy Thanksgiving! Wish I lived closer, I would bring a proper meal to ya.
Sue Mayer recently posted..It’s Good To Be Home…I think!!!
So very sorry to hear that you will be spending Thanksgiving in the hospital. Keeping Parker and your family in our prayers. Big hugs.
Heidi recently posted..Junior’s First Thanksgiving
So sorry he’s so sick. Yep, we’re well acquainted with pseudomonas as well. So sorry you’re still up there. The blueberry pancakes on Tues/Thurs morning are pretty good, too. Still in my prayers. How’s the family doing down this way? Let me know if we can help.
Rebekah recently posted..Another Angel
Just checking back to see how you’re doing. Hoping things are looking up, and maybe you’re headed home soon? Still praying.
Rebekah recently posted..Who’d have thunk it?
Poor Parker… I hope Christmas will be better than Thanksgiving!
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