Comments on: What happens next? http://prayingforparker.com/what-happens-next/ Raising a Special Needs Kid in a Typical World Tue, 22 May 2012 12:52:23 +0000 hourly 1 http://wordpress.org/?v=3.3.2 By: kadiera http://prayingforparker.com/what-happens-next/comment-page-1/#comment-434038 kadiera Wed, 10 Mar 2010 19:38:22 +0000 http://www.prayingforparker.com/?p=2395#comment-434038 I was just thinking on this subject this week. We may (*crosses fingers*) be looking at decannulation late this summer.... I was just thinking on this subject this week. We may (*crosses fingers*) be looking at decannulation late this summer….

]]> By: Jen in NY http://prayingforparker.com/what-happens-next/comment-page-1/#comment-433886 Jen in NY Wed, 10 Mar 2010 01:45:51 +0000 http://www.prayingforparker.com/?p=2395#comment-433886 Hi Tammy! Just wanted to wish you well and I hope you don't feel bad about taking pain medication. There are no medals for needless suffering! Feel better Hon! Gentle {{Hugs}} --Jen Hi Tammy! Just wanted to wish you well and I hope you don’t feel bad about taking pain medication. There are no medals for needless suffering! Feel better Hon! Gentle {{Hugs}} –Jen

]]> By: Heather http://prayingforparker.com/what-happens-next/comment-page-1/#comment-433846 Heather Tue, 09 Mar 2010 22:14:48 +0000 http://www.prayingforparker.com/?p=2395#comment-433846 oh my goodness. The end? No. I can't even fathom an end. I can't even dream of an end? I mean, I want to, but wow...that seems very far off. And then, not. We were kind of told the opposite..."he needs a temporary g-tube." "His lungs might get better." "He seems like he'll be OK with some therapy." And that was 3 years ago. I don't know. I'm afraid to hope for things like that. I want to never take for granted the beautiful creature sitting before me at this moment. oh my goodness. The end? No. I can’t even fathom an end. I can’t even dream of an end? I mean, I want to, but wow…that seems very far off.

And then, not. We were kind of told the opposite…”he needs a temporary g-tube.” “His lungs might get better.” “He seems like he’ll be OK with some therapy.”

And that was 3 years ago.

I don’t know. I’m afraid to hope for things like that. I want to never take for granted the beautiful creature sitting before me at this moment.

]]> By: Mandi, editor http://prayingforparker.com/what-happens-next/comment-page-1/#comment-433779 Mandi, editor Tue, 09 Mar 2010 16:04:15 +0000 http://www.prayingforparker.com/?p=2395#comment-433779 Oh all the time. We've spent almost 4 years going to therapy, appointments, evaluations, blood tests, to never leave the starting line and have any direction. The tests all come back normal and the therapy continues. It's hard to think about the future and what it holds. I daydream all the time. Oh all the time. We’ve spent almost 4 years going to therapy, appointments, evaluations, blood tests, to never leave the starting line and have any direction. The tests all come back normal and the therapy continues. It’s hard to think about the future and what it holds. I daydream all the time.

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