What happens next?

While I wish I was one of those Moms who could stand proud and exclaim,

“After declining any and all pain medication I not only assisted in the removal of the vast majority of my girly gadgets but ran a 10 mile marathon immediately after.”

I am so not that girl.

If truth be told I’m the girl that insisted on an epidural BEFORE the first contraction struck.

Now ya know.

So, while I’m sitting around waiting until it is finally time to take that next damn pain pill, you can read a guest post from my friend, Astacia, who writes one great blog at Mamikaze.com She is amazing and I know you will love her as much as I do.

_______________________

young girl with cerebral palsy in preschool with stampsWe always knew that our daughter, “Bear,” would need special care. She spent 14 days in the NICU as a full-term baby. When she was discharged, the NP on duty told us in her kindest way;

“try not to expect much.”

We’ve been through the gamut of specialists. At one time, she was seen in the Neurology, Neurosurgery, Gastroenterology, Opthamology, and Orthpedics every 2-3 months. Add in PT and OT and we became seasoned veterans of the patient care world before her second birthday.

She graduated from PT last year. No more time-wasting appointments with the nutritionist at the GI clinic. We’ve moved from the Opthamologist to the Optometrist. She is down to yearly check-ups with Neurosurg and Ortho. I received a major surprise a couple of weeks back when she was moved to consult with Neuro.

After five years of keeping tabs on referrals, tests and checkups, my calendar is feeling neglected. The “Dr.” section of my address book is collecting dust. The only active file is for IEPs.

I feel lost.

Almost unnecessary.

How about you?

Have you ever thought of the future when all the appointments, referrals, tests and checkups might come to an end?

Astacia’s blog is mamikaze

Comments

  1. Oh all the time. We’ve spent almost 4 years going to therapy, appointments, evaluations, blood tests, to never leave the starting line and have any direction. The tests all come back normal and the therapy continues. It’s hard to think about the future and what it holds. I daydream all the time.

  2. Heather
    Twitter:
    says:

    oh my goodness. The end? No. I can’t even fathom an end. I can’t even dream of an end? I mean, I want to, but wow…that seems very far off.

    And then, not. We were kind of told the opposite…”he needs a temporary g-tube.” “His lungs might get better.” “He seems like he’ll be OK with some therapy.”

    And that was 3 years ago.

    I don’t know. I’m afraid to hope for things like that. I want to never take for granted the beautiful creature sitting before me at this moment.

  3. Jen in NY says:

    Hi Tammy! Just wanted to wish you well and I hope you don’t feel bad about taking pain medication. There are no medals for needless suffering! Feel better Hon! Gentle {{Hugs}} –Jen

  4. kadiera
    Twitter:
    says:

    I was just thinking on this subject this week. We may (*crosses fingers*) be looking at decannulation late this summer….

Speak Your Mind

*

CommentLuv badge

Stop SOPA