Cath Lab came this morning. They had at first thought of scheduling Parker’s right heart cath this Thursday morning. My total silence must have signaled the fact that this Thursday was way too soon for me to be prepared emotionally and spiritually to hand over my son for what could be a very complicated test. The nurse must be a Mom herself for, without missing a beat, she skipped down to the next appointment and told me she would schedule Parker in for the 9th of May.
I have been hoping to get my hands on that new CPAP machine for Parker and give him a few nights on that before this procedure. Anything to try and tip the balance in Parker’s favor. But as of today Parker’s ENT has YET to write the simple note stating that in his professional medical opinion Parker’s health indeed necessitates this new and improved miracle machine. We are talking what, five lines and a signature at most? There isn’t a spare 2 minutes anywhere at all in this doctor’s day? Especially when the outcome of this endeavor could mean so much to Parker’s health?
The pit in my stomach is getting heavier by the minute. For the last year I have envisioned going into this cath procedure fresh off the news of a positive echo report. With the sinus surgery behind us, Parker’s nose and upper airway should no longer be a concern. He should have been able to tolerate wearing his CPAP each and every night. But this is the real world where I spend an obscene amount of time trying to keep a medically fragile child alive while taking care of 5 other kids, keeping a home running and a smile on my face. Can’t forget that smile, now can I?
I’m doing my best to trust in a Father in Heaven that I know without a doubt loves Parker more than I can begin to understand. I am hoping that by the time I place this beautiful child into the arms of his cardiologist and watch them walk into the surgery room that I will have the peace that comes from knowing that regardless of the outcome of this procedure, all will be well.
Because I know that there is one far greater than I at the helm.
I still ask for prayers. Prayers that in the next couple of days, one way or another, we will be able to procure this new CPAP for Parker and that Parker will be able to tolerate this new machine. Prayers that Parker’s upper airway will open up and that he will be able to breathe through his nose easily and not have to tax his heart with his effort to breathe. And we ask for prayers that, if it be our Father in Heaven’s will, Parker’s test results will come back showing that his pulmonary pressures are receding, and that we might be blessed to have this amazing spirit with us for many years to come. The interrupted ring signal was designed to attract attention and studies showed that dosage xanax facts two tone ring was the easiest to hear. Commercial addictions xanax s take advantage of this functionality, which has led to addictions xanax of the mobile music industry. 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Lots and lots of prayers are still coming from us!!!
Sometimes I wish all the doctors who are taking care of people I know out here would read the blogs. I wonder if they even know how casual and callous about things that are so important. I just can’t believe he hasn’t taken five minute to write that order.
Of course I’m still praying. Thank you for telling us how we can specifically pray right now.
Oh Tammy, I hope that it’s written ASAP and that it will really help Parker. I think of you both so often.
Hugs and prayers.
Megan
Here’s a trick- come up with some kind of deadline, ie. “I’ll pick it up on Friday AM because the medical supply company will be here Friday PM”, whatever. Just matter of fact. And don’t forget the “thank you SO much” wink-wink.
Just prayed for you and Parker. Keep the faith.
Mike
http://somethingaboutparenting.typepad.com/
I will be praying for peace and guidance for you. As I have always said, that once we become moms our hearts are forever changed. I can totally understand your frustrations and concern. May God calm your seas!!
BTW, I used to tutor a girl with muscular dystrophy, and the CPAP made such a difference in her life! It was a HUGE blessing to her, and impacted her health in a positive way.
Prayers you want, and prayers you’ve got.
How frustrating that the ENT has yet to write that simple letter! I’m like you – I would have hesitated at the earlier date too and would have needed a later one to prepare emotionally!
Tammy, {{{{HUGS}}}} and prays always for darling Parker. Your little guy is embedded within my heart. My prayers don’t stop with Parker, but continue for each member of your precious family and in earnest for you…the mom who holds it all together…with a smile.
I understand how much easier all of this would be if insurance companies were not involved and if those tiny little pieces of paper were not so necessary, yet so difficult to come by. Press on, Tammy (as I know you will).
Blessings
Oh, could I have a new Parky pic? I need a fix.
Please know that I am praying for Parker and for you and your family.
Praying! I hope that doctor gets off his butt and writes that note NOW.
Suggestion-which I find generally works-from having to do this as a patient, but also being a healthcare provider. Since you know exactly what needs to be stated in the note, a large majority of physicians are very appreciative if you ‘draft’ the letter/note for them & simply ask them to put it on their letter head, add any additional information they feel would be helpful-as to the reason why the different machine is better-from a medical perspective-and then ask them to sign. This saves them time, helps them get the exact information that is needed, yet still gives them the option to add anything else. Also-as someone else stated-tell them you need to have it to the insurance, or whomever by ‘this date-so you will pick it up on ….’.
My thoughts are with you.
I am praying for you and your family also! I like all the ideas every one has. I am the type that would call every day and remind them. I got that ides from when my daughter was on 02 from the lady I delt with there.