Update:
Parker’s surgeon is so pleased with what a great job of healing Parker is doing. 
He took a look at the Brave Hero’s tush and believe it or not, told us that it didn’t look that bad compared to a lot of tushes he has seen.  For a ‘regular’ diaper rash it still qualifies as pretty terrifying. But as a former IA kid’s tush it isn’t that bad.
Parker’s surgeon has actually had to readmit kids into the hospital because of such terrible rash, sores and infection.
He did say that this situation could continue for as long as a year. (!) And to continue our quest to find just the right bum cream for Parker’s particular patoot. (Try saying THAT three times fast.)
We are heading up to PCMC today to have Parker’s post op visit with his surgeon. Parker’s surgery site looks amazing and is healing beautifully.
However we are still experiencing some terror on his tushie. It is like one day we think it is starting to look better, just to have a new outbreak the very next day.
We get the redness looking less, and the skin breakdown gets worse. The skin breakdown starts healing up and the redness flares.
I have some new ideas to try out. It is just so expensive to go out and buy new creams just to discover that they aren’t helping at all. Yet when I look at the ingredient list of these creams the individual ingredients are pretty cheap.
How come cheap ingredients combined into one cream becomes suddenly so expensive? It can’t cost that much to just blend stuff up.
Ah. Yet another item to add to my ‘things to ponder list’.
You know. When I have nothing better to do.
We did have a birthday party:
Much time was spent trying to figure out how to untie a bow. Finally the older kids couldn’t take it any longer and tried to teach Parker the rip and roll method of present discovery.
Parker isn’t much of a cake eater. So pumpkin pie was served in it’s stead. Pumpkin pie is the perfect texture and consistency for where we are in Parker’s feeding therapies.
Birthday loot included books, a wooden xylophone, and a shapes puzzle. We also found a totally cool hand held drum ( I think it is called a sweet drum?) to use in our quest to teach Parker how to mimic rhythms, which is an awesome early reading activity.
A year ago a friend of mine gave Parker a few Holzitger Animals that her kids had grown out of and were no longer using.
Parker fell in love with these wooden animals.
Mom, however, almost fainted when she googled and discovered how much they cost.
We’ve used these little wooden guys in so many teaching situations and even took one up to PCMC with us this last stay.
I’ve been trolling Craigslist and our online classifieds hoping for someone looking to sell some of these little guys for cheap. But no luck.
I’d love to find two or three for Parker for Christmas. If anyone runs across some for a good price, will ya shoot me an email?
Okay. Off to Primary’s we go!
What worked wonders for Gav’s hiney in those rash (should be called BURNS for our kiddos!) days was a mixture of sensicare, vaseline, and calmoseptine. Mix equal parts of all them together and vavoom, you have yourself some majic paste.
Email me offlist your address and I can mail you some calmoseptine samples if you want. I got a ton from a conference this summer that I haven’t used.
Good luck with your doctor visit. I am hoping they can give you some suggestions to help the tushie!
Which animals does he have…Or, which ones would you like?? Please share your wish list.
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Twitter: therextras
says:
LOVE the ribbon-untying pic! I’ve been hoping to see some b-day pics. Thanks!
Parker, you are a doll! I like to savor gift opening too
That pumpkin pie looks so good! I love anything pumpkin flavor! Parker, it sounds like you had a wonderful birthday!
Oh how I hope they can help get that nasty ol’ rash under control! I cant stand the thought of it!
Love to all,
Amy
Dear Tammy.
I don’t know if this works or not, but perhaps it is worth a try? A friend once told me to get a real ripe avocado and smooch it up real good and use that for a bad diaper rash.
Ask the Doc if its ok first, I would hate it if he was allergic!
Tammy, what kind of animals does Parker already have?
Parker, you look so grown up. I love that you had pumpkin pie with candles.
Umm my kids always had a bad rash caused by yeast overgrowth which happened on antibiotics, illness or stress and of course poop. Try something for jock itch or even the ladies yeast infection cream in addition to something like desitin or the other skin protectants you are using.
Happy Birthday Parker!!! I’ve been following you from PYP, and Parker has touched my heart with all the hard work he does. He is so cute with that present!
Have you tried a 50/50 mixture of Aquaphor and Maalox? You can have the pharmacy mix it or you can at home (it’s difficult to do, but saves $$)
Works wonders for that area, although I can’t vouch for IA kids.
My comments didn’t post before! Try looking on ebay for the animals, they were like $7 a piece.
I see that you are receiving many good suggestions for diaper rash treatment. Here is one more to try. I once had a doctor tell me to use Milk of Magnesia, just pat it on their little buns, then sprinkle cornstarch overtop. Hope it works! Good Luck and we Love you PARKER!
That look of concentration is great. You would think the surgeons would have ideas on creams since they see it so much. Happy cream hunting, and happy Thanksgiving.
I don’t know if you have it in the US, but Bepanthen has done wonders for “wet sores” for my kids. Even the worst rash heals nicely under a thick layer of Bepanthen. Here’s a link: http://www.bepanthen.com.au/home/
Hi,
I am from Germany and will be back from my holidays in a week – if you want to I can see what I can find on German ebay, they tend to be considerably cheaper there…
Love
(long time lurking) Dagmar
Sayman Salve is your friend. It’s the only thing that worked for us. We used it as a preventative if they were on antibiotics or anything. It cleared up horrible diaper rash overnight. I know you have to get it online, but most pharmacies will order it for you and have it there the next day.
Wow, those little wooden animals ARE pricey! Who knew? And good luck with the diaper creme search. I’m glad he’s doing well. Hang in there, lady, and enjoy your Thanksgiving.
Praying your visit today goes well. I hope you can also find the right recipe for Parker’s little tushy.
Harry did not want to rip the wrapping paper on his presents and instead insisted that I carefully open them for him. I think he is a wee bit spoiled lol!
I am glad that the check up went well and that despite his poor bum being rashy that he is healing well.
Just stopping by to wish your family a beautiful Thanksgiving!
Love,
Amy
oh Tammy how have I fallen so far behind on blogging that I’ve missed Parker’s birthday!! Sorry about that, but we still send our very belated, but happy, birthday wishes to your 4 year old! I can’t belive he is 4 already! Glad to read the update that the dr is pleased with how Parker’s bum is healing!
I posted on 5 minutes, but wanted to get you here, too. Vusion. It’s the only thing that works for Braeden’s awful rashes. We’ve tried everything else; making our own, soaking in stuff, lots of different things. Vusion is a prescription, but our pediatrician had some samples.
Hey there! I totally feel ya on the terrifying bum issues. Our dr. doesn’t get very excited at Chelsea’s, but I do! Yesterday it flared up again awfully then this morning when she woke up, some was on her leg and looked like a rug burn with scabs!!! Like it was so acidic, or whatever it had burnt the skin until there was a thin layer of blood that dried on her leg. I’m sure you’ve tried everything, but my sons miracle mix was vaseline and corn starch, just mix until you have a white paste. it works so so for chels, but was awesome for my son! Good luck!
Hi, me again, don’t even know if you will see these comments on older posts but wanted to let you know that my friend put malealuca (not sure how to spell that) on my son’s frightful bum once and I was astounded at how fast it cleared his little hiney up.
It’s horribly expensive though =0(
And I see you mention PCMC, that was our home away from home =0) Didn’t realize you lived “Nearby”