The surgical procedures all went well.
Good news is that Parker’s lungs still have their elasticity. His actual airways are of normal size.
His sats are beautiful right now.
Parker is no longer in need of a CPAP machine at night. < ---- GIANT BLESSING!
It was confirmed while they had the little camera down his airway that the low tone in Parker's tongue is really wrecking havoc with his ability to breathe. Add a collapsing (even though normal sized) trachea and viola, Trach City.
Parker had been resting comfortably. But the drugs wore off, he woke up and needed to be suctioned. A happy camper he was not. Suctioning scares him. The newness of breathing through a trach instead of his nose is scary.
And Parker is angry. Really, really angry.
I know it will get better. It will get easier. But that isn't much comfort for tonight. And try telling that to a two year old who is scared and hurts NOW.
I didn't realize that we would from now on be bringing a suction machine with us where ever we go. I need to think of a way to turn an oxygen bottle, trach tube and suctioning machine into a fashion statement. Any ideas?
Then there are the questions I have. How do we provide the humidity Parker needs for this trach when we leave home? The tube to the humidifier in the PICU is only a few feet long. Is that the amount of freedom that Parker will be limited to at home? How will he ever learn how to crawl. How will I know when I am sleeping if Parker needs to be suctioned?
I am praying that this Trach does what it is expected to. I am praying that by by passing a whacked out airway his heart won't have to work so hard to get air to his lungs and his PH values will receed and Parker will grow and be healthy.
And then finally...........FINALLY, Parker can just be a normal kid.
Normal. What a concept.
equipment can be altered and adpated–just ask the nurses or about RTechs tubing extensions. suctioning–well, there will be nights you will be up all night frequently suctioning him, other times not–just depends on what is going on with his resp status. once you leaRN ALL ABOUT TRACHS and trach care and suctioning–you will be much more comfortable about this. i continue to prayer for you. you got alot of good news today! send you all a hug.
Many, many, many hugs. I emailed just now, too.
many new things which bring a rainbow of hope for health….many hugs too
Praying for peace for you and fast healing for Parker.
Im so glad to hear things went well for Parker. Im praying for him.
Sending prayers. I hope you are home soon and Parker is on the mend quickly.
Veronica sends a big hug and kiss too.
I’m so happy to hear that he is breathing better, and so sad he is so angry. I didn’t realize you had to suction a trach, my goodness mama, you are going to know enough to be one of those PICU nurses really soon-if not now.
I hope Parker gets used his newest round of medical intervention soon. Sending all of our love….
Many prayers coming from here Tammy. You and Parker are always in my thoughts.
I’m glad things went well overall – but sorry he’s scared and angry. How hard it must all be! I hope you find a good solution for all of the equipment – I’m sure you’ll become a master in no time!
Reading that his sats were beautiful was quie a relief. Sorry that he is angry and scared, as you probably are too.
No answers to your questions, but I am sure someone can. Lots of prayers & hugs.
I am glad that everything went well. Hopefully Parker will realize soon that he feels better with not having to strain just to breathe and gets over being mad.
Keeping your family in our thoughts and prayers.
I so hope this is the answer you’ve been looking for.
Praying for you, wish I could be there to give you a big hug. I know that a lady who lives in Salem has a little guy with a trach, he is just under a year, and he only has to have the humidity at night, and when he sleeps. Not sure that you will be in the same situation, but I can put you in touch with her if you would like. Email me and let me know. Her little guy is Tayten, and he is a twin. Samantha has her hands full, but is the sweetest girl ever.
Hugs
You and your family are in my prayers as well.
Praying for NORMAL. Praying for rest—I can only imagine how tired you must be. Praying for all of this to work once and for all.
One has to redefine ‘normal’ at a time like this
Tammy I hope this does the trick and Parker is feeling better soon.
Hi Tammy,
I just heard that Parker was Trached. Nathaniel has had one since he was 3.5 weeks old, if you need any info or just need to vent, you can contact me k.
Hugs to you and Parker
Sara
Amazing what docs do… our Eleanor needed a temporary trach placed during major airway surgery at 5 days old. I am with you on the stuff that needed to be lugged. In clinic we often saw kids with their equipment and paraphernalia in a rolling suitcase. Could even be a kid friendly/colourful one. Praying for easing of his pain, and a peaceful spirit as he adjusts.