We take Parker up to PCMC for his first echo since his trach was placed. Usually I send Reed up to do anything that involves an echo, but with all of the new equipment that Parker sports it is simply impossible for one soul to take him anywhere these days. Plus somebody has to be sitting in the back with Parker in case he needs to be suctioned during the trip up or back. And to insist that he keep his trach ‘nose’ on. And to make sure he doesn’t decide to yank his whole trach out and scare the living daylights out of his poor, already stressed beyond belief because of this adventure, parents.
They gave us six months to see if this trach would be the answer to Parker’s super high PH levels. Tomorrow will be about two months since the trach was placed. We could surely use some good news.
Between the MAJOR funk I have been in lately and now the stress of tomorrow’s echo results, someone should really just shoot me now.
This is TWO seat rows worth of space totally taken up with Parker’s ‘must have essentials for traveling’ gear. Except for the oxygen bottles. They are on the floor under Parker’s feet. I literally have to start packing up the night before a trip to the doctor’s. If I wait until morning I’ll never get everything ready.
The red bag is both a diaper bag and an emergency trach bag. This bag stays ready and fully packed at all times. I also have two backpacks full of extra trach, feeding and ostmy supplies in case of an emergency (or an earthquake) and we have to grab stuff and run.
Being the Type A Worrier that I am, knowing that I have everything Parker needs ready to go at a moment’s notice is the only way I can sleep at night.
Yeah. I’m a bit of a fruitcake these days. But when you are dealing with a medically fragile child, you simply can’t be too prepared.
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You are in my prayers. I hope that you received some positive news tomorrow Tammy!
Oh Tammy, you are such a wonderful mommy! Parker is so lucky to have such a caring family. I pray that you receive good news tomorrow and that you have a safe healthy trip. You all will be in my thoughts and prayers.
Much love,
Amy
Good luck at the doctor’s appointment.
And that’s a great picture of all the kids!
Fruitcake.
Praying all goes well – good luck and lots of ((hugs))
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We will praying that the test goes well and gives some hope.
Have a safe trip tomorrow.
One can never be to prepared, i would have all that stuff ready too, cuz you never know when you night need it.
you guys are in my prayers that everything goes smoothly tomorrow and you (Parker) get good results from the testing! Praying the trach is doing its job and the numbers go down!
Praying everything goes well and you get some good news!!
I know you’re looney, but it’s a lovable looney and with good reason.
Our family keeps a constant prayer for Parker.
Praying that today’s appointment goes well!
From one fruitcake to another….
All I can say is Amen to that my dear friend! :0)
Hugs,
Trina