Those of us who have kids with special needs tend to celebrate milestones a little differently than our peers raising only typical kids.
I’ll never forget when Parker started walking.
He was 3.5 years old.
We were still celebrating months later.
For some reason when your kid has to work so much harder to gain a skill other kids just pick up naturally, the result is so much sweeter.
Tuesdays are weigh in days for Parker.
This week our Brave Hero weighed in at Thirty-six and a Half pounds.
A milestone of magnificence.
Why?
Well, this puts Parker on the growth chart for kids with Down syndrome.
Gaining weight means that Parker’s heart isn’t having to work so hard that it’s causing him to lose weight.
It means that the blenderized diet we create each day for Parker WORKS.
And it means that his almost 7 year old, teeny tiny designer hiney can actually FINALLY FIT into size 4t jeans.
BTW, those of you who shop consignments stores, NOW is a great time to shop for Fall clothes as they are marked down mightily during the summer. The first week of August will be a great time to shop for NEXT year’s summer clothes. Summer clothes will soon be marked down mightily.
PS: Still no word on the new date for the right heart cath. But seeing as we are heading into another 2 week round of antibiotic for this darn sinus infection of Parker’s pushing this cath back may have been a bit serendipitous after all.
Lily is a year old and barely weighs 13 pounds. I guess it is typical for her disorder but it still is hard to get used to the fact that she will just be a tiny little thing for the rest of her life. It is kind of cute though
Twitter: Special_Happens
says:
What a wonderful weigh in! Yeah Parker!
That is such exciting news! I started reading your blog I dont know how many years ago, but you were trying to get him up to 20 lbs. He has gone a long way
Oh and my kids are tiny. My 5 1/2 yr old son weighs only 34lbs. my 7yr old daughter weighs 38. and my 5 1/2 yr old daughter tops them both at 40. lol
I just love reading about Parker!
Parky is like Brady – once he gets out of the toddler sizes, he is going to have to wear slim sizes
Whooo hoooo – congrats on the 36 lbs!!! I think Brady weighed about 40 at 7 – so Parker is catching up to us – although Brady is a little on the small side – 46 lbs at 9 
Want to make that your new goal LOLOL I hope the antibiotics kick in and knock that sinus infection out – they are soooo nasty 
Happy summer and wtg on the deals!!!
Whoo hoo Parker!!!! Great milestone!
Yay for Parker! That is so awesome. I remember when he was struggling a long and could barely make it to 20 pounds. He’s come a long ways
!
YAY for Parker & thanks for the shopping tip!
Congrats, congrats, congrats!
We know just the feeling. Our little Noah works, works, works. He goes to so many appointments while others babies are playing and napping. But we are so thankful for how far God has brought him!
So thankful for how God is working in Parker’s life! He is doing so well! Congrats goes to you guys as well for all the hard work you put into helping him become all who God has created him to be
I haven’t read your blog for some time (a computer reformat wiped all of my favourites), for some reason I decided to search for you again.
WOW, when did Parker turn 7! He’s looking so fashionable and tall.
Great to “catch up ” with your goings on again.