The days are all running into each other up here.
Well, we can scratch Bi-Pap off of our list of hopefuls. Just like the CPAP experience, Bi-Pap caused Parker’s heart to beat in rhythms too funky to consider any where near normal. Plus a heart rate hanging in the low to mid 40′s is not the stuff dreams are made of.
So, the ENT came to talk to us and prepare us for The Trach Experience.
There is still a posibility of Parker’s issues being Reflux related with a few Micro Aspirations thrown in for good measure. In which case we will need to prepare for The Nissen and G-Tube Experience.
Or, if we are especially lucky, we may just get to experience All Three.
I won’t even go to that special place where we wonder where in the heck all the blood loss is coming from. Hopefully Tuesday will give us some very easy answers to that one.
But each time Parker looks up at me with those huge eyes and smiles.(or pulls off my glasses and throws them across the room while frantically signing “No! No!”) I know from the depths of my soul that every second of The Parker Experience is nothing short of a blessing for which I am forever thankful for.
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Wishing you better luck with the next tests. Hugs
Poor little man. All these tests would be a huge ordeal for an adult…Parker must be completely bewildered. I’m praying for you, Tammy. I know this is exhausting and scary. And I’m specifically praying they find the source of this bleeding.
Keeping my fingers crossed that they are able to complete the tests that need to be done and you get some answers that help him.
I just hope that somewhere after this blur of tests and proceedures and frustration passes, that you will find a healthier, stronger Parker in the aftermath. I am praying for you every single day. Lifting you up to dear Jesus!
Blessings to you all!
I DITTO “LEEJO”
Continued big hugs…. I’m really hoping that Tuesday brings answers.
Everyone else has said what I’m hoping for Parker. I hope that you get some answers, and that things get better for Parker QUICKLY.
oh I wish we could come visit and give you and Parker a big hug! I’m sorry he’s going through so much with all the testing. Always praying…
More prayers for answers and strength coming your way along with many cyber-hugs.
Love, Kei
Here is an ardent prayer for many, MANY more retreival of your glasses from across the room. And many more NO signs. And many, many, many years of Parky hugs.
What a trooper! Still being a toddler (the throwing game… knowing he shouldn’t) amidst all this!
Hopefully Tuesday will be filled with answers! Good luck!