Last night they tried to start Parker’s continuous feeds back up at half strength. About two hours later he was in such intense pain the feeds had to be stopped and Nubain administered.
He was finally able to calm down enough to sleep at about 2:00 a.m. this morning.
At about 9:00 a.m. we started the cycle again.
Non-verbal medically fragile kids get a double whammy. They have to endure the pain without the vocal outlet others kids have.
Instead of being able to yell out how much he is hurting, or where he is hurting, Parker bangs his head against the metal crib railings. He grabs and scratches behind his ears. He bites and lashes out.
Last night Parker was just about in the most pain I have ever seen him in. Trying to hold him down so he wouldn’t hurt himself was awful.
Needless to say we won’t be going home today.
The verdict is sketchy as to whether we’ll be able to go home tomorrow either.
Not only did Parker go through a day and a half of throwing up every ounce of stomach contents, they also suctioned anything hiding in the crevices out before his surgery.
Getting things moving again is going to be very painful.
If you could keep our Brave Hero in your prayers for his pain to be manageable and that he can heal and return home, that would be so very appreciated.
We weren’t anticipating this kind of hospital stay, much less surgery when we checked into the ER Saturday afternoon.
I think I’m still a bit shell shocked.
I keep wondering when Parker will get his shot at being healthy. Is that really so much to ask?
Ohhh poor Parker! I hate to think of him being in so much pain
. We are most definitely praying! Please keep us updated as you can!
No. That’s not too much to ask.
I just cringed the whole time I was reading this. My son Miles’ last surgery was the most painful for him. He had been through tougher surgeries but for some reason he had so much pain with the last one. He’s also non verbal. It was so horrible watching him try to deal with such pain. I’m so sorry for you and Parker right now. Believe that I will be praying all day! The only thing I could do was be beside him and sing the name of Jesus over us. It was the only prayer I could utter. It was the only comfort I could offer him. I was so thankful to see that while I sang the name of Jesus over him that he fell into a sleep.
Peace to you both!
I’m so sorry for Parker and what you are all going through right now. I am keeping you all in my prayers.
Lots of prayers for Parker to recover quickly. So sorry to hear he is having so much pain. Poor little guy. Big hugs.
It is not too much to ask. You just have to keep fighting and not give up (at least that is what I keep telling myself with Hannah). Your heart will tell you the what the right path is for Parker, and right now, it is for him to fight to get better.
No, it is not too much to ask. I will pray, but God may not want to hear me because I question. Why is he putting sweet, innocent Parker through so much? It just doesn’t seem right. Parker has been through more one person should ever have to go through. Tammy, you are so strong, and it will be that strength that will get you and Parker through this crisis. Big Hugs!
I just heard about Parker’s hospital stay at 5 minutes for mom. I’ve read your past few posts and am sorry to hear what a crummy hospital stay this hasbeen.
I hope he starts tolerating his feeds soon so you can get your ticket outta there!
Oh, sweetie, I’m so sorry to hear that you’re ALL suffering so much. Your heart must be broken in two. I will ABSOLUTELY pray for your family and Parker, sweet thing. Tammy, keep holding your head up to the Lord. He is your shelter in this rocky moment, and his strength will wash over you and Parker
Poor Parker… poor you! :S Prayers coming your way…
oh no….I am so, so sorry to hear this. I know what you mean about him not speaking. You know my grandson Maddox doesn’t talk so when he’s sick or hurting, it’s a guessing game….a game that we’re not always good at! Hugs and prayers coming your way from Virginia……..
Parker has endured more pain in his four years than most people experience in a whole lifetime. I feel so bad for him, Tammy, and for you because I know you just can’t stand it. You’re both in my prayers.
I am thinking and will add Parker to my prayers tonight. I just hate that he hurts so badly. I wish I could take it all away for you.
So sorry Parker is going through this. I’m just grateful he has such a wonderful family to support him.
I’m definitely keeping Parker in my thoughts and prayers. I’m also petitioning love, support and prayers by spotlighting Parker tomorrow. I’ll email the ‘featured’ button if you’d like to put it on your blog.
Oh this is so heartbreaking. THat poor baby. It just isnt fair that he has to suffer like this! I feel terrible for both of you. I know it must be so hard to watch him in so much pain. You are both in my prayers. Lots of hugs!!
Poor sweet Parker!
He is in my prayers, as are you! I wish he could catch a break.
I am going tp pray for you all, and especially Parker.
I am new to your site and this just breaks my heart.
God Bless you all. I hope He shows some relief soon!
Your poor sweetie. I’m so sorry he’s in pain. I hope things turn around and you guys get to go home sooner than expected somehow.
I’m praying right now for the pain to leave and for all to start working properly. Also keeping you in my prayers as I know Hospital stays are very hard on all involved.
Suzi
Twitter: therextras
says:
Praying for Parker.
Twitter: livingingrace
says:
I can’t imagine what you are going through. I’m praying. It’s all I can do. Know I send hugs to you all from up here. Wish I was closer.
Oh Parker, I am so sorry you have to go through this, and Tammy having to watch it is just as awful! He will definetely be in my prayers!
Oh, I’m so sorry! I thought things were looking up. Give him a hug for us, and give yourself a big hug, too. And yes, we’ll keep praying for your family.