Deep down inside, in a place where the spirit whispers to your heart, I had this knowing that Parker was going to be born with Down syndrome. After his T&A. Taking into account my ‘advanced maternal age’ and the length of Parker’s femurs, we were given odds “good enough to take to Vegas” in terms… [Continue Reading]
The Bill of Rights: Special Needs Style
Feb 9, 12 By · 2 Comments
A Bill of Rights of parents of kids with Special Needs (I don’t know who originally created this. If anyone knows, please let me know and I’ll give them credit.) You have the right to take one day at a time, and take that day positively. Having control over the future is a pure illusion…. [Continue Reading]
Speech (or no speech) and the kid with special needs.
Feb 7, 12 By · 14 Comments
A Facebook friend posted this today: From your child with special needs: “Now I lay me down to sleep, I pray the lord to give me words to speak. But if they never come this way, let my mommy know everything will be ok. Boy, howdy, did this one hit home. I’ve been thinking of… [Continue Reading]
Welcome to Beirut by Susan F. Rzucidlo
Feb 6, 12 By · 12 Comments
Bright and early Saturday morning I headed up to a Utah Parent Partner meeting at the Utah Family Voices offices. It seems as though there are a few at Parker’s Pediatrician’s office who think I might be good at this kind of stuff….pointing parents in the direction of needed resources. Personally I think everyone else… [Continue Reading]
It’s not just about keeping Parker alive….
Feb 4, 12 By · 7 Comments
I’ve lost 18 pounds. Really it should be more. I gave up my beloved Dr. Pepper over ice weeks ago. I haven’t even had a Diet Coke. I should be in a size 6 by now, right? Isn’t that the way it works? All this water I’ve been drinking should have flushed my system thin. I… [Continue Reading]
The Red Thread and My Child with Special Needs
Jan 23, 12 By · 6 Comments
There is a Chinese folklore, which tells about the connection of family members. The Chinese say that there are invisible red threads that connect a newborn child’s spirit to all of the people that will be important in their life. As the child grows, the threads shorten to bring these people closer together. Parker’s… [Continue Reading]
