“Double for Trouble” is what Parker’s pedi tells us when all hell starts to break out in Parker’s lungs. Heart rate in the stratosphere. Cough. Junky lungs. Overall blech. So we are doubling up the Albuterol.  Not one, but two hits on the Flovent. And generally feeling sorry for ourselves. But in trying to look… [Continue Reading]
A Prayer Request
Sep 17, 10 By · 19 Comments
Our family will be fasting this Sunday. We are also asking for all the prayers we can. We are specifically asking for prayers to: 1. To know if it is in Parker’s best interest to have him undergo another right heart cath. 2. To know if the last heart cath results were indeed somehow wrong… [Continue Reading]
The Slippery Slope Called Hope
Jun 24, 10 By · 8 Comments
We came back from our Pulmo appointment last week feeling a bit of hope. When you are the parent of a medically fragile child, hope is often that elusive golden ring, sometimes so very close, most times beyond your wildest reach. Dr. Pulmo directs our attention to a x-ray taken less than a month ago…. [Continue Reading]
And Suddenly My Heart Is A Little Lighter
Dec 11, 09 By · 12 Comments
We received the results of Parker’s sedated chest CT. The results were “consistent with severe chronic aspiration.” For some parents this would be bad news. For us though it is actually good news. This could be a reason why his cardiologist wasn’t able to get his lungs to oxygenate the way they should. Add this… [Continue Reading]
It’s A Rough Job Being The Big Sister
May 27, 09 By · 4 Comments
When you are the big sister to a kid with special needs you tend to find yourself doing all kinds of unusual things. Like kneeling on the basement stairs while smushing your face into the netting of the baby gate. Why, you ask? To entice your little brother to reach out and have a sensory… [Continue Reading]
Courage and One Brave Hero
May 19, 09 By · 12 Comments
Courage is fear that has said it’s prayers. ~Dorothy Bernard I know the fear. I know the prayer. I think the courage belongs all to Parker. He truly puts the Brave in Hero. I received a phone call from my Missionary on Mother’s Day. Oh, how sweet it was to hear his voice. To hear… [Continue Reading]
