Thursday morning will find Parker with EKG probes on his chest and covered in ECHO goo. Yup, it’s time to visit the cardiologist again. Words can’t describe how much I hate these appointments. If it were possible to send Reed while I stayed home tomorrow, I would……with my bottle of valium clenched tightly in my… [Continue Reading]
Parker Loves Gam
Most of Parker’s first years were spent in my arms sitting in a rocking chair inside of his ‘safe room.’ Sick far more often than he was healthy, we spent much of the time reading books. Parker wouldn’t allow me to turn the last page of a favorite book because he didn’t want it to… [Continue Reading]
Thankful
I can’t begin to express how thankful I am that Friday has come……and gone. Our check in time was noon. And thankfully, everyone was running on time so we weren’t stuck in a teeny little room for hours this time. It was right about now that I think Parker remembered where he was and what… [Continue Reading]
Faith and a Right Heart Cath
For me, faith is a work in progress. There are some areas of faith that I am exceptionally strong in. These may be the same areas that others struggle in. I often read of Moms, who having reached a certain point, turn the matter over to God, in full faith that His will is best…. [Continue Reading]
A date. A time. A right heart cath.
The date is set. The time confirmed. Friday Parker’s cardiologist and the anesthesiologist of our choice will carry our Brave Hero back into the lab for Parker’s 4th right heart cath. There are good things about this. The fist thing being that come Saturday this will all be behind us. We’ll know what meds are……and… [Continue Reading]
It’s the weight of the world.
Nothing can freak this Mama out more than a totally out of the blue, surprise call from Parker’s cardiologist. I was out when he called. And I had left my cell phone at home when he called that. Awesome. He’s wondering where we are in addressing Parker’s aspiration issues. Me too. I’ve spoken with the… [Continue Reading]










