I think sometimes people raise a mental eyebrow when I tell them that Parker is a full time job. An often exhausting full time job. I create med and feeding lists each month. Yup. They change that often. Putting together a new one each month also allows me to go back in time and… [Continue Reading]
Shinning up my countenance
Jun 29, 11 By · 5 Comments
The other day I was talking with a someone about a mutual friend. This person made the comment that our mutual friend had totally turned around her countenance after many of the worries she had been facing were beginning to work themselves out. The next comment was how ‘we now needed to turn around YOUR… [Continue Reading]
We are ALL beggars in God’s sight.
Aug 1, 10 By · 10 Comments
When I was a kid and my Dad was in the military, we were stationed in Turkey. Whenever we lived overseas my Dad insisted we live on the economy. My Dad felt strongly that in order to really experience a country, you needed to rub shoulders with it’s citizens. There’s lots of new to experience… [Continue Reading]
Superstitous Much?
Jul 11, 10 By · 8 Comments
I set the timer to go off each hour on the hour. This ensures that I never miss a bolus feeding or a dose of Parker’s medication. Our daily schedule makes nurses at the hospital look at me as though I’m missing more than just a few marbles. “Why, ” they ask, “don’t you just… [Continue Reading]
As Real As It Gets….
Jul 5, 10 By · 19 Comments
The other day my 11 year old came up to me and asked if we could watch a movie…..just me and her. After I told her I’d love to watch a movie with her, she looked at me and asked what I suspect was really weighing on her heart: “Mom, could you and I start … [Continue Reading]
Tender Mercies
Mar 18, 10 By · 25 Comments
Update: THANK YOU for the love and prayers. I talked with Reed about an hour ago. They’ve got Parker up on the trach pod at Primary Children’s Hospital. Parker’s needing his vent 24/7 in order to keep his sats at a decent level. The trach pod is a glorious thing. 4 rooms reserved only for… [Continue Reading]
