A Facebook friend posted this today: From your child with special needs: “Now I lay me down to sleep, I pray the lord to give me words to speak. But if they never come this way, let my mommy know everything will be ok. Boy, howdy, did this one hit home. I’ve been thinking of… [Continue Reading]
Welcome to Beirut by Susan F. Rzucidlo
Feb 6, 12 By · 9 Comments
Bright and early Saturday morning I headed up to a Utah Parent Partner meeting at the Utah Family Voices offices. It seems as though there are a few at Parker’s Pediatrician’s office who think I might be good at this kind of stuff….pointing parents in the direction of needed resources. Personally I think everyone else… [Continue Reading]
It’s not just about keeping Parker alive….
Feb 4, 12 By · 5 Comments
I’ve lost 18 pounds. Really it should be more. I gave up my beloved Dr. Pepper over ice weeks ago. I haven’t even had a Diet Coke. I should be in a size 6 by now, right? Isn’t that the way it works? All this water I’ve been drinking should have flushed my system thin. I… [Continue Reading]
Snow Painting
Jan 25, 12 By · 7 Comments
It happened. Finally. It snowed. Snow. Finally Not so much as to be a hassle. Not too little to notice. Just enough. Snow used to be a sensory nightmare for a certain Brave Hero. It’s better now. Except that gloves aren’t tolerated. Even if hands are cold to the verge of frozen. Instead my littlest… [Continue Reading]
Even if the rest never follows.
Jan 24, 12 By · 8 Comments
Sometimes the once upon a time me sneaks up and reminds the me in the present of goals set and dreams once dreamt. She reminds me that debt and doctors and pulmonary hypertension were never supposed to be part of our future, and that when my kids finally reached they age they have I… [Continue Reading]
The Red Thread and My Child with Special Needs
Jan 23, 12 By · 6 Comments
There is a Chinese folklore, which tells about the connection of family members. The Chinese say that there are invisible red threads that connect a newborn child’s spirit to all of the people that will be important in their life. As the child grows, the threads shorten to bring these people closer together. Parker’s… [Continue Reading]
