What I feed my g-tube enhanced kid.

My g-tube enhanced Brave Hero has done so well on the blenderized diet I prepare for him daily. He lost a significant amount of weight from being sick so many times this season, but we are back up 2 pounds…..two more to go before we are back to his baseline! I use this for Parker’s… [Continue Reading]

Weight Gain and the Child with Special Needs

Parker was almost up to 37 pounds. So very close. The weight gain happy dancing was in full force. Then he got sick. Pneumonia. Pseudomonas. That damn Adenovirus that came with a 12 days of diarreha and zofran just to keep the meds down. Before we we knew it Parker had lost down to skin… [Continue Reading]

Tales from the organic co-op…….

We feed Parker a blenderized diet made up from as much organics as we can afford. You can read more about it here. ______________________________________________ Every other Saturday I make my way to Provo to pick up our co-op order. I’m working to find the funds to make this a weekly adventure, but until then every… [Continue Reading]

Deep Dark Secrets: Special Needs Style

It’s no secret how much I hate the cardiologist appointments that involve echo’s and ekgs for Parker. I’ve also been very open about the handfuls of nerve meds necessary to get this Mama through a right heart cath. It’s a very good thing that these events don’t take place on a weekly basis. Or else Reed… [Continue Reading]

So, what are you feeding YOUR kid?

Parker is almost 5.  (November 19th!)  He weighs 29 pounds. (sigh)  He grows taller, but not wider. His diet consists mostly of 4.5 cans of Pediasure a day, directly into his tummy via his g-tube. Day after day after day after day. We noticed a big difference when we started  him on oral feeds each… [Continue Reading]

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