We’re still here.
Still kinda lost.
Fearful.
I’m having a hard time getting my mojo back.
We took Parker up for his Chest CT only to discover he won’t stay still enough for the procedure. So we go back up on Monday for a sedated Chest CT.
Haven’t heard from anyone in regards to Parker’s stoma reduction, new tubes, FEES, pH probe, and new trach size.
Trying to decide if when they do call we should schedule after Parker has received his H1N1 vaccination. Cause Primary’s is officially crawling with H1N1.
I’m starting to wonder if I’m ever going to be able to feel happy again.
Hopeful.
I really miss feeling hopeful.
Hi Tammy…I know the burden you carry, though yours is slightly different from mine. I wish I knew what to say to make it better. I wish I could erase it, for both of us. I wish it could just be easier for you. Sending love and hugs from a fellow sister…
Tough! Heart wrenchingly TOUGH! I will keep you all in my prayers.
I was worried about you guys…no posts for a few days. I don’t have words to help, but know that there is always hope-sometimes it’s all we have. Just get through the next hour, the next mealtime, the next night, the next day. You are so strong, Heavenly Father is watching out for you and he worries as you worry. Praying for you and Parker, oh give him a good squeeze for me.
I am so sorry Tammy. You and parker are in my prayers and thoughts.
Oh hang in there Tammy. I am right there with ya with a bunch of different test and different issues. You have more to handle than me and I find it hard where I am at. You are strong and brave and such a good mother. Hoping that you get good news, and renewed strength. Praying for you guys. HUGS
Twitter: therextras
says:
Is all the help you seek for Parker? Is there somewhere to go to ask for Tammy?
Praying for Parker.
oh Tammy…hang in there. one day at a time…always smile and take one day at a time. hugs and prayers to you….
Twitter: therextras
says:
And praying for Tammy.
Hello Tammy,
I have been praying for you and Parker. Also have asked a number of friends to pray for you too.
I just want to tell you that Jesus loves you. You can go to Him, and He will give you rest. Matthew 11:28-30 says, “Come unto me, all ye that labour and are heavy laden, and I will give you rest. Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls. For my yoke is easy, and my burden is light.â€
We will be praying for your family.
Tammy – today I stumbled upon your blog and felt compelled to give you a “cyber hug” as you are an amazing mom. I was a Pediatric nurse for many years, working with the sickest of children. God hand picks mothers to care for his most fragile children — so when things get hard, just ask Him for alittle help.
Tammy, I am so sorry you have to feel this way. I am sending you hugs and always prayers. I love your family so much. Parky, I love you sweet boy. You will always be my hero.
Love,
Amy