Parker is cycling through sinus infections like crazy. His sinus’ are ‘man-made’ by his ENT. Parker’s ENT had to go up into his nasal cavity and actually remove both bone and tissue to create passage-ways. Ugh. While they are better than having none, they don’t work nearly as well as if he had been born with them.
So he gets sick, goes on several rounds of antibiotics, gets better for about a week and then gets sick again.
He is one miserable little guy.
We took him to the After Hours clinic on Monday where we saw yet another Pedi who hadn’t even bothered to read his chart. We filled her in on everything, including the fact that nothing less than a 30 day round of Omnicef was going to put a dent in this infection.
We left with a script for Amoxicillian. Yeah. THAT’s working. You BETCHA.
So today when Parker’s temp reached 102.3, I called the office of Parker’s ENT for the FIFTH time and left the FIFTH message explaining the situation.
I’m still waiting for the ENT’s office to call back. Yeah. THAT’s gonna happen tonight. You BETCHA.
So, I just called the After Hours clinic that we visited on Monday. I’m waiting for a return call from the After Hours nurse. There’s a very likely chance that they will want us to come in AGAIN, pay $25.00 AGAIN, for them to write for an antibiotic AGAIN. Hopefully one that works.
We just went through this exact same process less than two weeks ago. In the month of May alone we have paid almost $300.00 in co-pays for ANTIBIOTICS alone. That doesn’t include the $25.00 a pop co-pay, which so far this month we have forked out $125.00 as of last Monday.
But, hey. We don’t need to eat. So what if our bank account is on total EMPTY and we just got paid…..today. I can scrimp yet another month’s worth of meals from a rapidly emptying food storage room.
Yeah, THAT’s gonna work. You Betcha.
This poor kid. He deserves a break. His heart rate is climbing, his O2 levels are dropping. This is where Parker’s Pulmonary Hypertension starts heading back up to life threatening levels. The scene is being set for another trip back up to the PICU at PCMC.
I’m trying to keep a positive outlook. You know, try not to worry about Parker’s health. Try not to worry about how we are going to pay the bills. Try not to focus on the ache in my heart.
And like THAT’s really working.
You BETCHA.
Tammy, I know that nothing I can say will make it all better. But I do know that you and your family are strong…that you will “do” this. And know that my prayers ALWAYS include Parker. How helpless a mother feels when she can’t get doctors to listen to what she knows is true.
If you ever need to get out a great big humongous screaming rant (via typing) just email me. My virtual ears and shoulder are available.
I have not been by in a LONG time. to long. I am so sorry. You guys need a break.. Come and move to AZ. Their long term care rocks!!! Hugs and LOTS of Malachi blessings coming your way!!
I second Melody!!! There isn’t anything I can say other than I am praying for you and your family. I will pray for your finances and of course for Parker to be well soon. Go on girl get your rant a goin`…
Thinking of you
Kim and Miss T
Im here for you too, if you need to vent. Feel free to email me anytime. Im praying for you and Parker. I just dont understand why these Drs, just don’t listen, do they just don’t care or what? Makes me sick to think we rely on these Drs so much and half the time they aren’t even listening to the real problem.
Please know that im thinking of you guys.
I wish that there was something practical I could do to help. I really do.
I’m so sorry Tammy – you all continue to be in my prayers.
Feel better soon!! My prayers are continued for you guys!
Ugh, it is so hard when your sweet baby is not feeling well and the people who have made their lot in life to help you, well, just aren’t. I wanted to mention (I just can’t help myself) that I have made my wishes known to the kids pediatrician now I just tell her what I want for them. I just say, no, that won’t work. It didn’t work last time… I don’t have the time or money to waste and I don’t want them to suffer any longer than necessary. It works pretty well to be bossy. I was always such a coward in the dr. office until izzy’s accident and now I really have lost a lot of respect for doctors as a profession so I am Izzy’s biggest advocate (and my other children of course) and I will make sure that my views are considered and followed concerning them.
Thank you so much for your comment. It is wonderful to blog with so many believers.
I wish there were something more I could do besides saying “I’m praying for you guys!” but please know that I am!
and hey, about that pit stop? Believe me, if you were on our route I would sooo be making a pit stop so I could hug that cute boy of yours in person, but you live in the total opposite direction from where we are headed!!
Oh Tammy, my goodness you and Parker need a break. You are managing fabulously under the circumstances. I wish I could do something to help. I’m still hoping the concert is a huge success.
Much love to you and Parker from Elainah and I.
I just want to send my love, and let you know we are thinking about you…
Hoping you got some resolution to this that avoids a PICU admit. Many, MANY hugs to you and Parky.
Lovin’ to Parker. I hope and pray that someday you and a healthy Parker will look back on these years wondering how you made it through.
Geez. What a disaster. A round-a-bout of Dr visits and hospital admissions REALLY drains you. We just finished this on Thursday. I am dreading winter (we live in Australia). How old is Parker now?
I/m so sorry things are going so badly lately! Wish there was something I could do!!
Just wanted to let you know that we are praying for Parker! HUGS
Ughhh Tammy – that is sooo annoying – I would NOT have left with amoxicillin….. I hope you can get the right meds for Parker. I wish I could say there is hope in the sinus infection department, but we still struggle with them – sighhhh! And – spring time allergies don’t help the situation at all. I’m sooo sorry – wish there was more I could do
Parker is always in our prayers! Sending big hugs too!!!
He is just the cutest thing ever. You’re in my thoughts and prayers.
BEYOND BRUTAL!!!!!! I am sooooooooooooooooo sorry!!!! {{{HUGS}}}