Kids born with Down syndrome are also born with a much higher chance of dealing with Leukemia than their typical peers.
Parker gets monthly CBCs because of his pulmonary hypertension and the meds he takes to battle it.
So a close eye is always kept on these monthly draws.
But early signs of Leukemia include low red and white blood cells along with low platelets.
Guess what Parker’s last 3 CBCs show?
- A dropping crit.
- Low platelets
- A drop in white blood cells to 4.4 from 5.1 the previous day.
Parker’s previous CBCs trend to a almost pre-anemia theme. This isn’t anything new. But it helping reassure anyone right now either.
*faint*
This could be from the RSV.
It really could.
Or it could be early signs of Leukemia.
Parker’s Pedi is more than a wee bit worried.
She wants a new CBC ran now rather than waiting the 1-2 weeks that Primary Children’s Hospital suggested.
So we are in the works of trying to get one set up.
Dr. C has seen me fall apart a couple of times the last few months. So she doing her best to handle me with care, but her worry is contagious.
I was just getting my heart resigned to the fact that Parker’s lifespan would not match that of his older siblings.
The pulmonary hypertension makes that a done deal.
But because we always have monthly CBCs pulled I’ve felt pretty confident each month that Leukemia wasn’t something I needed to worry about.
Cause we all know I can find enough to worry about all my own self.
So I’m asking, yet again, for the prayers.
Specifically that this new CBC comes back clean.
And that Parker can just be given the opportunity to heal from this last round of terrifying.
I hate this luekemia worry too! Every time a lab is drawn. It scares me even more seeing so many DS online friends have it. Because I know that Jax would never survive it. I don’t think I would even put him through the chemo. But his labs are never normal either, and being sick made them all drop like crazy. Lets be positive thats whats happening with Parker!
You all have been, and will continue to be in my thoughts and prayers.
((Big Hugs))
Twitter: AMomBlog
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Continued thoughts and prayers for your little hero and the rest of your family as well.
Twitter: MommaHopeful
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You are always in our prayers….even more so now. I wish there was more I could do to help you Tammy. I really do.
Sigh.
God is good. All the time.
All the time, God is good!
Parker and everyone in his life, are in my prayers. Thanks for continue to blog.
Praying for you and Parker! This is a big fear of mine too! Try to keep positive while you wait…..although easier said than done! Love, Hugs and Prayers!!!
I am not a big hugger. I am a fellow special needs mom. As a fellow special needs mom, I understand you must bewondering how much more you can handle before you really fall completely apart. If I saw you in person now, I would give you a hug!
I will keep you and Parker in my prayers. I know you are stronger than you know and that you are so happy to have this little boy in your life.
Kepp us posted and hug Parker for me!
Oh no, I hope his CBC comes back clean!
You got it sweetie, extra-extra-prayers.
Hi Tammy,
I’ve been reading your blog for some time now and finally felt that I need to comment. My son Alex has CP and tends to get Pneumonia and this past Jan. he was admitted to the hospital. While there his blood draw revealed low white count and low platelets. The Doctors thought it was from his Seizure meds, and wanted to change them right away! He has been on these meds for 3+ years and I knew in my gut that they were wrong! I dug my heels in and would not let them change the meds. (I’ve never done this before) We agreed that we would do a third test in the morning and you know what his levels were on the rise! And a week later they were back to normal. Try not to worry about Parker, I’m sure it’s just the effects of the virus on his body.
I will continue to Pray for Parker. He is such a sweet strong boy that I have fallen in love with over the Internet!
Carol
You know we’re praying! I’m shocked it’s such a fight for another CBC. Really?!!! Grrrr…..
I am praying for your dear son and yourself. May God give you strength, hope and healing.
Parker is always in my prayers and will continue to be, with some extra prayers for a clean CBC
I just heard about a charity called “Songs of Love.” They write special origianal songs for children facing tough medical, physical or emotional challenges. I have heard a couple of the songs they are great, all about the kid and their favourite things. I wondered if Parker would like one.
This is their websitehttp://www.songsoflove.org/
Wishing Parker good health and fun times,
Claire
This is sounds so scary. SEnding LOADS of hugs to you and Parker (and the rest of the family because they need them too!)