
The little bits of happiness and a beautiful life with Down syndrome.
The last time we took Parker to the dentist he was still so small that the dentist held Parker’s head in his lap and Reed held Parker’s feet in his lap. Me? I prayed like hell this would hurry quick and be over. Yesterday we took Parker to the dentist again. This time he climbed… [Continue Reading]

The Great Depression, My Grandparents and Me.
My dad grew up in an orphanage. His dad died when he was young, leaving his mother to raise a family of 4 kids by the money she earned cleaning homes. Because she was gone so often working, leaving the oldest to tend the younger, a neighbor called the then version of DCFS because the… [Continue Reading]

Where I come clean and get my act together.
True confession time. Hopefully confessing will be the final nudge I need to get my act back together. I hate dinner. Seriously. Hate. It. Okay. Maybe I just hate it when I’m so tired I can barely see straight and I still have dinner to make……and clean up. After a day of caring for Parker,… [Continue Reading]

Those smiles. They’re back.
Maybe it’s because the antibiotic if finally kicking in. (We have TWO more rounds to go!) Maybe it’s because our most favorite nurse is back with us full time. (It looks as though our THIRD nursing company change has been the charm. Seriously. It’s been amazing.) Maybe it’s because I’ve been trying to get our… [Continue Reading]

Proof Positive
Parker’s need for a Sleep Safer Bed includes a lot of reasons from his severe aspiration risk to the fact that he easily get entangled in his bolus feeds tubing to the fact that he is a HUGE fall risk climbing out of his crib and a strangulation risk with the cuffed trach and trach… [Continue Reading]

So, is it still a sin to covet a…..
Our ‘extra’ oxygen concentrator died today. Well, at least we received word of it’s death. There is a ‘possibility’ of it’s resuscitation, but no guarantee comes with the $800 bucks they want to attempt to breathe life back into it. It’s a make and model that is not even made anymore, and this time next… [Continue Reading]














