Praying For Parker

In the LDS culture children are baptized at the age of 8. When Mormons baptize someone, it’s by full immersion. If even your hair rises to the top, they dunk you again. I was baptized in the Mediterranean Sea while my family was living in Turkey. On the third time I was finally relaxed enough… [Continue Reading]

I really can’t be the only one who looks our her window at her garden and feels her heart yearn for Spring, can I? There won’t be as many pumpkins this year. There will be many more types of greens….mustard greens, kale, and the like. Greens and carrots are good for the lungs. Especially the… [Continue Reading]

My g-tube enhanced Brave Hero has done so well on the blenderized diet I prepare for him daily. He lost a significant amount of weight from being sick so many times this season, but we are back up 2 pounds…..two more to go before we are back to his baseline! I use this for Parker’s… [Continue Reading]

It happened. Finally. It snowed. Snow. Finally Not so much as to be a hassle. Not too little to notice. Just enough. Snow used to be a sensory nightmare for a certain Brave Hero. It’s better now. Except that gloves aren’t tolerated. Even if hands are cold to the verge of frozen. Instead my littlest… [Continue Reading]

Sometimes the once upon a time me sneaks up and reminds the me in the present of goals set and dreams once dreamt. She reminds me that debt and doctors and pulmonary hypertension were never supposed to be part of our future, and that when my kids finally reached they age they have I… [Continue Reading]

Even if the rest never follows.

The Red Thread and My Child with Special Needs

There is a Chinese folklore, which tells about the connection of family members. The Chinese say that there are invisible red threads that connect a newborn child’s spirit to all of the people that will be important in their life. As the child grows, the threads shorten to bring these people closer together. Parker’s… [Continue Reading]

Would it kill them to stop doing that? The R-word and it’s derivatives.

Is a lack of consideration the new black of today’s social culture? When I’m really in the mood to raise my blood pressure I’ll find myself reading the comments section of our local Utah newspapers, namely the comments following articles on the topics of education or politics. I don’t know why I do this to… [Continue Reading]

Making Medicaid More Transparent: A Question From A Utah Legislator

I was asked to get opinions on this idea by a Legislator. I will be sharing your comments with this Legislator, so now is your time to allow your ideas to be heard. When struggling with accountability within the welfare system the lack of transparency (where the money is going and on whose behalf?) makes… [Continue Reading]

Expectation and the Child with Special Needs

I’ve noticed lately that sometimes adults expect less out of kids with special needs than they do from typical kids. “Oh, that’s okay.” Don’t worry about it. I understand.” Um. No, it’s not. Not only will he pick that up but he’ll apologize to you as well, I think to myself. Just like any other… [Continue Reading]

Flour-free Playdough Recipe

It took a long time before the Brave Hero would even think about touching playdough. Now, not only does he enjoy playing with it, he’s willing to explore new textures within it. So I made a batch of flour-free playdough, because of it’s reputation of being silky and soft. If you are a parent to… [Continue Reading]