We took Parky to the doctor tonight.
Have I told you how EXCELLENT our pediatrician is? I mean amazingly EXCELLENT? As you know, compared to simply EXCELLENT?
Well. She is.
After watching Parker for awhile she feels strongly that it is time to address the issues of a NISSEN and a G-TUBE.
We had been warned that this was most likely the next course of action. But the surgeon wasn’t real thrilled about a surgical site so close to Parker’s ostomy site. But since Parker is rapidly losing weight from not being able to tolerate his feeds PLUS trying to make himself throw up from the discomfort of the reflux the next course of action needs to be sooner rather than later.
Then there is also the worry of whether Parker’s PH levels are at a place where he could withstand surgery for a Nissen and G-tube placement.
I’m not sure that I am emotionally prepared for another surgery complete with PICU stay. I know without a shadow of a doubt that we aren’t financially ready for another surgery with a PICU stay. Oh. And look. There is Christmas right around the corner.
Parker spent his first Christmas in the hospital. And the days after his second Christmas in the PICU.
sigh……
BUT, reflux is a major cause of PH and you know where Parker’s PH levels have been. So if the meds aren’t working then surgery is our only other option.
Yeah. I’m stressing. I really don’t think my nerves have fully healed from this summer’s hospital experience.
In other medical news, Parker’s crit is 30. At 28 we transfuse. His electrolytes are all over the place so we are stopping the lasix for a couple of days, adding in a few Pedialyte boluses and retesting on Thursday.
They suctioned some of the loverly stuff from his trach to check for RSV and a few other viral bugs.
Parker is snoozing in his safe room. My heart aches with love for this little bit of humanity who has been asked to endure so much in his short time here.
And I am off to find where in the heck I put that never ending bottle of nerve pills. I’m gonna need ‘em.
Twitter: livingingrace
says:
Praying, hugging. Kiss Mr. P for me.
We are praying for dear little Parker- what a trooper!
I am so sorry. I feel so bad. Sweet little baby, oh I wish I could hug him. It is amazing what you can learn from someone so young. I am praying for himand will continue.
Much love,
Amy
Still praying.
It’s great that you have a pediatrician that you love and seems like she has Parker’s best interest at heart. I’ll be praying for guidance for the doctor and for you.
In His Love and Blessings,
annb
I’m praying that you will have great wisdom in making what seems like these impossible decisions. Luke had a NISSEN two years ago and it didn’t last too long. We finally got rid of two years of throwing up after we began to give him digestive supplements. I realize what works for one child doesn’t always work for another.
I’m glad to hear that Parker has such a great Pediatrician, that can make all the difference in the world.
Love in Christ,
Sue
Praying for Parker! I have been a “lurker” for a while and it breaks my heart to hear that Parker is having a hard time. I have a two year old with a trach, g-tube & fundoplication! Jax has had all three of these things since he was 2 months old and his is doing really good with all! The fundo has never given us problems, and to tell you the truth I dont know where we would be without the g-tube. Like I said, he is two years old (turned two in June), and he only weighs 19 pounds…we have a hard time gaining weight also! I hope that the g-tube and fundo are the answers to Parkers troubles! I will keep you all in my prayers!!
L.M.
Alabama
So happy you have a wonderful Ped. She seems to really care for Parker. Praying for you and Parker today.
Poor sweet Parker. This may be just what he needs to get over the hump. All 3 of mine have sucessful fundo’s and g-tubes(minus 1 doesn’t now). If you like you can email me, join the feeding club. Will keep praying for you all!!
I’m very glad that you have a great ped. I’m sorry though that you are looking at another surgery ahead. I’ll be praying.
I just want you to know that I have stumbled across your blogsite. Parker is not only my prayers, but many, many others from the Christian Knitters Group located at http://www.ravelry.com. The site is still in beta testing, so unless you have an invite, you cannot enter it.
God Bless your son and you too!
Much love and many blessings!
Kay
My heart aches when I think about how difficult and scary this must be for your family. I will be praying not only for Parker’s health but also that God would give you rest and peace as you go through this next challenge.
hugs and prayers…..
Sending up many prayers for this sweet precious little boy and you his momma and daddy. May the dear Lord bless him and keep him in his hands.
:S Prayers to you and Parker.
Prayers constantly going up in behalf of Parky and your entire family. {{{{HUGS}}}}
Oh, I’m so sorry to hear that. I long for the day when you post–”Guess who’s gained 5 pounds and hasn’t been to the doctor in 2 months,” I guess we’ll all keep waiting. My prayers are with you and your family. Hang in there.
Poor little mumchkin…
Many MANY hugs, Tammy.
glad to hear you have such an excellent ped! Will be praying for the decisions you have to make regarding upcoming surgeries!
I wish I could pay for all your medical bills!! I wish Parker was so big he’s too heavy for you to carry around. I wish a lot of things.
I’ll be sending your sweater tomorrow. I hope it’s the right address. Highland, UT right?
Keeping you and yours always in our prayers.
I am praying for sweet Parker.
What a blessing to have such an excellent doctor. If the surgery is what Parker needs, than I’m praying for him to be ‘healthy’ enough to tolerate it. And hoping you find your bottle of nerve pills MOM. Our son has had the g-tube and Nissen … without as many other complications that Parker has had … hugs to you.
I pray for Parker’s strength to tolerate the surgery well and for his healing and physical strength. We know he has another source of strength to be able to continue to endure. Hugs, Parker. My boys say hi and that they will say prayers for you.
Tammy, I pray you find the pills and strength. Hugs for you, too. Oh, keep the chocolate for yourself…you need it.