Comments on: Moving Mountains While Tripping Over Molehills

By: Sunny

Sunny — Fri, 06 Nov 2009 13:15:21 +0000

Thanks for the reminder of the power of hope. Little Parker is always in my prayers.

By: amy flege

amy flege — Fri, 06 Nov 2009 03:41:36 +0000

you can move those mountains!!!!

By: Chris

Chris — Fri, 06 Nov 2009 00:48:02 +0000

I was thinking he had already had the nissen- doh. Yes, I do see that in his future, then (ugh).
Hugs.

By: mum2brady

mum2brady — Thu, 05 Nov 2009 19:49:39 +0000

Hugs and good luck Brady’s PH probe didn’t show reflux – but – my carpet begs to differ What do I know – I’m just a mom – apparently.

Hugs to you and Parker and I hope he is better soon!!!! Prayers being sent, as always

By: Lacey and Jax

Lacey and Jax — Thu, 05 Nov 2009 18:46:27 +0000

You know, reflux can wreek some major havok. I bet thats what it is and if you can get the nissen, life would be great. I can’t believe they haven’t done it sooner….wait a minute, I can believe because when they did Jax g-tube he said he didn’t think his reflux was that bad so they didn’t do the nissen. About a month later he refluxed and aspirated and stopped breathing, so then we had to schedule ANOTHER surgery to do the nissen.
Doctors are so dumb sometimes.

When they placed Parker’s g-tube he still had his ostomy. Because of this they decided to opt out of the Nissen, even though THEN it was known that he was refluxing. They have all kinds of stuff pointing to his refluxing, and I would MUCH rather just go straight to the Nissen. And I’m not one to push for unnecessary procedures with Parker’s issues of losing his respiratory drive when put under. ergh.

By: Barbara

Barbara — Thu, 05 Nov 2009 18:09:01 +0000

Praying for Parker and Tammy. (No need to covet here.) I see where my prayers are being answered (some).

I cannot help but question the need to do another swallow study with all the evidence and belief of aspiration. It is great that they can combine all the sedated procedures and surgeries. If the swallow study does not show aspiration, will the Nissen be cancelled?

Sounds like a long time to be NPO for our cheeto-loving Hero. If the swallow study was deemed unnecessary (a mountain moved) could he have his surgery sooner?

Hugs and germ-free cyber kisses.

Tammy says: You know the cardiologist was saying that if we have actually seen him reflux, why wait for the Nissen. Kids with g-tubes who on on continuous feeds at night are notorious with the reflux. But the Pulmo and surgeon want these tests ran first.

We have evidence on x-ray of a possible aspiration pneumonia, PLUS his bloodwork shows medibolic acidosis, AND his last swallow study a little over a year ago showed the stuff coming right back up on the tape, but they weren’t sure if it was ‘enough’ for a Nissen. Not to mention we find stuff in his trach nose all the time.

But with our luck, all the actual testing will show nada.