Comments on: Meet Parker http://prayingforparker.com Raising a Special Needs Kid in a Typical World Tue, 22 May 2012 12:52:23 +0000 hourly 1 http://wordpress.org/?v=3.3.2 By: Dawn http://prayingforparker.com/meet-parker/comment-page-1/#comment-469167 Dawn Sat, 25 Jun 2011 16:20:05 +0000 http://www.prayingforparker.com/?page_id=810#comment-469167 So nice to read of your and Parker's story. Thank you for sharing. We recently adopted a medically fragile child from California. It can get so overwhelming, however, knowing that he no longer lives in a nursing home, and now has a family makes everything worthwhile. Love the timer idea. Seems that the more organized I become, the easier things flow. So nice to read of your and Parker’s story. Thank you for sharing. We recently adopted a medically fragile child from California. It can get so overwhelming, however, knowing that he no longer lives in a nursing home, and now has a family makes everything worthwhile. Love the timer idea. Seems that the more organized I become, the easier things flow.

]]> By: maria cordner http://prayingforparker.com/meet-parker/comment-page-1/#comment-467097 maria cordner Sat, 05 Feb 2011 00:22:19 +0000 http://www.prayingforparker.com/?page_id=810#comment-467097 It was overwhelming to get to know Parker's story and to feel your love for him! Thanks for sharing! It was overwhelming to get to know Parker’s story and to feel your love for him! Thanks for sharing!

]]> By: Heather http://prayingforparker.com/meet-parker/comment-page-1/#comment-466787 Heather Fri, 07 Jan 2011 16:20:03 +0000 http://www.prayingforparker.com/?page_id=810#comment-466787 Hi Tammy and Parker! I read about Parker and am so encouraged by his and your strength. I also have a little guy who is 5 months old with an extra chromosome, trach, feeding tube, severe feflux, nisan and many of the same medicines that you have to deal with. It's amazing how strong you can be when you have no other choice. Hang in there and know I am praying for you both. I have no doubt that he's worth all of it!!! Hi Tammy and Parker!

I read about Parker and am so encouraged by his and your strength. I also have a little guy who is 5 months old with an extra chromosome, trach, feeding tube, severe feflux, nisan and many of the same medicines that you have to deal with. It’s amazing how strong you can be when you have no other choice. Hang in there and know I am praying for you both. I have no doubt that he’s worth all of it!!!

]]> By: maggie http://prayingforparker.com/meet-parker/comment-page-1/#comment-457525 maggie Tue, 28 Sep 2010 02:48:45 +0000 http://www.prayingforparker.com/?page_id=810#comment-457525 hi, i have a friend who's 4 month old son is having a hard time gaining weight. he has a button and gets 30 calorie formula. they are hesitant about upping more calories because he has heart defects that need repairing. we were talking about seeing if they can't blend foods to give him since he seems to be hungry all the time on just formula. i was wondering if you have any suggestions i can give this mama so she can talk to her son's nutritionist and doctors about it. thank you! hi, i have a friend who’s 4 month old son is having a hard time gaining weight. he has a button and gets 30 calorie formula. they are hesitant about upping more calories because he has heart defects that need repairing. we were talking about seeing if they can’t blend foods to give him since he seems to be hungry all the time on just formula. i was wondering if you have any suggestions i can give this mama so she can talk to her son’s nutritionist and doctors about it.
thank you!

]]> By: Annette http://prayingforparker.com/meet-parker/comment-page-1/#comment-453718 Annette Thu, 26 Aug 2010 11:58:26 +0000 http://www.prayingforparker.com/?page_id=810#comment-453718 Just a little info I would like to share with you. My daughter had trisomy 18. She was on a vent and oxygen 24/7. After her death, we had an autopsy done. The dr said that her brain was soft. He said that that happens when someone is on a vent for long periods of time. My daughter was 9-years-old when she died. Not one dr ever told me about the brain thing. BTW that's not why she died. She had a respiratory infection and unbeknown to us, the dr/hospital decided that her life was not worth the antibiotics that would save her. But you might want to ask a neuro about the brain becoming soft due to extended vent usage. Just a little info I would like to share with you. My daughter had trisomy 18. She was on a vent and oxygen 24/7. After her death, we had an autopsy done. The dr said that her brain was soft. He said that that happens when someone is on a vent for long periods of time. My daughter was 9-years-old when she died. Not one dr ever told me about the brain thing. BTW that’s not why she died. She had a respiratory infection and unbeknown to us, the dr/hospital decided that her life was not worth the antibiotics that would save her. But you might want to ask a neuro about the brain becoming soft due to extended vent usage.

]]> By: Tanya http://prayingforparker.com/meet-parker/comment-page-1/#comment-453501 Tanya Mon, 23 Aug 2010 14:38:27 +0000 http://www.prayingforparker.com/?page_id=810#comment-453501 What an amazing boy! My daughter has a trach as well. Would love to discuss blenderized diets with you! What an amazing boy! My daughter has a trach as well. Would love to discuss blenderized diets with you!

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