Moms of kids with trachs know that along with those pieces of plastic tubing and velco ties comes a lot of……er……..snot.
Hey. Let’s face it. There really isn’t a pretty word that describes the gelled waste that is made (in copious amounts) when a trached kid has a sinus infection.
And if I may share, just for a moment, we are knee high in sinus sludge around these parts today.
Just keepin’ it real boys and girls. Just keepin’ it real.
It takes a lot more than some trach muck to freak out a Mom of a medically fragile child with special needs.
A few extra holes in my kid, along with the stuff that comes out of them, is just a part of everyday life around here.
Considering these extra outlets make keeping my Hero alive a whole lot easier, I’m kinda sorta thankful for them.
In a way that only a mother of a medically fragile kid with special needs could truly understand.
This kid? I’ll take him anyway I can.
Regardless of the funky ooze that might leak out of him along the way.
such a cutie .will remember parker in my prayers xxxx
Poor baby. I hope the running stops soon.
Oh wow, I love that smile!
I LOVE how REAL you are and it brings a smile to my face to FEEL the LOVE you have for your little HERO!!! He’s definitely a cutie!!!
Parker reminds me a lot of my Beloved Ashley! The way Parker’s hand is bent while he is sleeping is exactly the way my Ashley would position her hand when she slept. How I miss my girl!!!
http://neotechproducts.com/home.php
here is a link that another mom sent me, it is a medical supply company that will send out FREE samples, even to parents. I have gotten 02 nasal canula holders, wraps for sat monitor…they have really cute trach holders…hope you can get a few extras
Just a few things, have you tried a passy-muir valve? it provides passive resistance so you can hear them vocalize. It also helped my Sean get off his trach. You need to work with your pulmonologist to use this. With all the tubes and wires you need to run them through the pajamas in the back and from the feet so they won’t get tangled around their arms or neck. Also, there are chain trach holders that make keeping their neck clean easier. Also there is a Neo Sucker that has a very small tip that lets you clear their noses. Of course keeping everything as clean as possible will help as you already know. Just dad