And we couldn’t be more thrilled. He’s still on two different antibiotics along with his other meds, but that’s okay.
His BNP is down now to 400 from 655 two days ago. I’ve found that as the numbers get lower it takes longer to see big improvement. It’s kind of like losing weight. At first you lose pretty quickly, but as time goes on it takes longer and longer to see much improvement.
We have a sleep study appointment for this Sunday night. An immunology appointment, cardio appointment and quite a few others in the coming weeks.
I have so many people to thank for their prayers, gifts, visits, etc. We are truly blessed.
Now I have just tomorrow to try and get the word out about Parker’s Benefit Concert. A sweet friend passed out about 500 flyers. Our local grocery store, Kohlers, has been kind enough to place both flyers and donation jars at their registers along with another local video store. We mailed out about 200 post cards to people who have previously attended Stephanie Smith concerts. I had so many other promotional venues to pursue, but it is kinda hard to put on your advertising hat when you are taking care of such a sick baby in the hospital.
I am really, really, really nervous that this will be the first concert ever to be held where nobody comes because we didn’t get the word out enough. Yikes!
Finally, I have people always ask if Primary Children’s hospital is a non-profit hospital that doesn’t operate on the parent’s ability to pay, then why do we need to fund raise in order to help pay Parker’s bills, etc?
Well, just as Reed was about to check out and leave the phone in Parker’s room rings. It was the billing department calling. They had already touched base with our insurance company, knew what our part of the bill would be and asked Reed if he could please pay the bill for THIS hospital stay NOW…..BEFORE he checked out.
Yeah.
Give me the name of the billing person that called and I’ll BONK HIM/HER IN THE HEAD.
When my baby had her surgery, they requested my portion upfront. As a newbie to the world of hospitals/insurance/scams/babycare, I took out my credit card AND PAID! If I knew then what I know now… I left the hospital in tears because we really didn’t have the money to pay for her surgery in one lump sum, but I felt that if I didn’t pay, my baby wouldn’t have the surgery that she needed. I was such a sucker. I should have said, SEND THE BILL. What do they do about indigent care? Or parents who don’t have insurance for their children?? Or jobs for themselves???
I’m so sorry you have to go through that with Parker. I’m soo sorry.
I am so glad he is home, and I wish you ALL THE BEST for the concert!
SO glad sweet Parker is HOME!
I will be praying for the concert!
That is soooo brutal about the bills. arrghgh
Stupid bill stuff!
I am so glad he is home and things are going better!!! this is such wonderful news. I hope the concert is wonderful – I wish I could be there to enjoy it!
Billing departments tick me off!! But I’m so glad that Parker is home and doing better! Good luck with the concert, I can’t wait to hear how it goes!
Soooooo happy that Parker is home
And, I’m keeping my fingers crossed that the concert goes well and that you are able to raise a lot of money to help pay for Parker’s medical bills.
Hope the upcoming appointments go well, and tell the billing people at PCMC to take a hike!!!!!
Hugs!!!
Yay! Parker is home!
I hope the concert is PACKED!
Yaaayyyy! You are home! I hate the billing dept. We have never paid them up front. I agree with Christie tell them to take a hike, (to say it nicely.)
Hope you get to spend some wonderful cuddly Parky time together.
We plan on coming to the concert, if Andy’s leg doesn’t fall off. (long story….)
Give him a hug for me okay? And one for you too of course!
Hospital bills. BLECH.
The billing department had a lot of nerve didn’t it? You think they could’ve cut you some slack after what you’d just been through. Sending them a big ole raspberrry!
Praying that Parker continues to feel better and that the concert is a rip roaring success!
I am so glad that parker is back home now! Our prayer are with you.
Oh my stars! SERIOUSLY???? Grr… that’s so frustrating.
I’ll be praying for lots of people to come to the concert tonight!
I’m glad Parker is home though