Parker’s cardiologist just called. Yup. Eight o’clock at night and this amazing man still takes the time to call.
He needed to update us on the results of Parker’s latest blood draws.
The update wasn’t so great.
For the third month in a row Parker’s BNP has gone up. The BNP is a pretty good indicator as to wheter his Pulmonary Hypertension levels are going up too.
His liver enzymes are up. Due most likely to the medication Parker needs for his Pulmonary Hypertension.
Yesterday we received the results from Parker’s last sleep study.
Seems like Parker has a very bad air leak around his trach. His trach needs to be enlarged and it needs to be changed out to what is called a cuffable trach.
Parker’s vent settings also need to be adjusted. He simply isn’t getting enough oxygen at night.
That familiar feeling of fear has begun to set in again. Pulmonary Hypertension takes lives. Parker’s battle with this horrible disease has just been bumped up a notch.  Or 50.
Oh Tammy! I’m sorry
What is the next step?? Praying for you right now…
Tammy, keep the faith. God has kept Parker with you through so much. I have to believe that he is going to get through this latest setback as well. Your fear is totally understandable; I wish I could say something to make it all better. Know that we are praying and sending lots of love your way. (((BIG HUGS)))))
Oh dear! I will be praying!
Praying hard and sending you cyber hugs.
Oh Tammy….we’re praying…
dawn
I can only imagine the heart wrenching fear you must have. Prayers are being said for you!
Tammy — Lots of prayers coming your way for Parky and for you. I wish I could say something to alleviate the worry, but I know how impossible it is to not worry. Just know that you’re being prayed for — both of you!
Prayers, love and hugs…always.
Wish I could be there, don’t know what I would do, except be there.
Tammy, I am so sorry to hear this. You and Parker have my prayers and positive thoughts.
Hugs and prayers and more hugs and prayers.
I wish I had the words to ease your worried mind and heart.Instead I send you prayers and peace.Lots of it.
More prayers for Parker, you and your family. I’m at a loss for words right now…
((Hugs for Parker))
Kay
God, this little boy and this family have been through so much already. You’ve helped them fight battle after battle. God, please keep Your hand around Parker until the doctors get this under control. Lord, be with the family and give them peace and comfort. Parker is Your son, too, Lord. You love him more than any of us ever could. And You know what he needs to be fixed. God, give the doctors wisdom to know how to do it. Amen.
Thinking of you guys.
(((Big Hugs)))
Twitter: therextras
says:
Prayers and more prayers for Parker and his whole family.
I am praying for you! (Amen to Karen’s (#13) prayer!) My three year old and I just said a special prayer for Parker. I believe in the power of children’s prayers.
Thinking of you all!
Praying for you and your family. Stay well.
Oh Gosh… I am so sorry Tammy. I wont stop praying. I love you all.
I’m so sorry. I hope it all gets cleared up and his numbers get better. I will keep him in my prayers.