Comments on: Emergency Preparedness and the Child with Special Needs. http://prayingforparker.com/emergency-preparedness-and-the-child-with-special-needs/ Raising a Special Needs Kid in a Typical World Thu, 09 Feb 2012 19:03:27 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Janet C http://prayingforparker.com/emergency-preparedness-and-the-child-with-special-needs/comment-page-1/#comment-429772 Janet C Fri, 05 Feb 2010 00:13:30 +0000 http://www.prayingforparker.com/?p=2052#comment-429772 We got a sequal eclipse, off of craigslist, and paid about 1/2 of retail - still a pricey thing, but it would have cost half of what we paid to rent one to go to Florida over the holidays, and we've gotten good use out of it besides that trip. It's vaguely backpack sized (fits under an airline seat, so you know it can't be too big) and it has a detachable set of wheels. It weighs....maybe about as much as the vent. It does continuous flow at 1/2, 1, 1.5, 2, 2.5, or 3 liters; it also does pulse-flow (breath activated; so this normally only works well for adults, and theoretically won't work on a vent in that mode, though I know people who've done it). It's also far quieter than that brown concentrator (I know, because we have that same one!) The one problem to buying off craigslist is that if anything breaks, you may have to pay instead of your DME. It may be worth convincing them to look for a used one for you, as there are several companies online that sell used ones on consignment for patients. We got a sequal eclipse, off of craigslist, and paid about 1/2 of retail – still a pricey thing, but it would have cost half of what we paid to rent one to go to Florida over the holidays, and we’ve gotten good use out of it besides that trip.

It’s vaguely backpack sized (fits under an airline seat, so you know it can’t be too big) and it has a detachable set of wheels. It weighs….maybe about as much as the vent.

It does continuous flow at 1/2, 1, 1.5, 2, 2.5, or 3 liters; it also does pulse-flow (breath activated; so this normally only works well for adults, and theoretically won’t work on a vent in that mode, though I know people who’ve done it). It’s also far quieter than that brown concentrator (I know, because we have that same one!)

The one problem to buying off craigslist is that if anything breaks, you may have to pay instead of your DME. It may be worth convincing them to look for a used one for you, as there are several companies online that sell used ones on consignment for patients.

]]> By: Kim http://prayingforparker.com/emergency-preparedness-and-the-child-with-special-needs/comment-page-1/#comment-429765 Kim Thu, 04 Feb 2010 22:57:30 +0000 http://www.prayingforparker.com/?p=2052#comment-429765 http://neotechproducts.com/home.php here is a link that another mom sent me, it is a medical supply company that will send out FREE samples, even to parents. I have gotten 02 nasal canula holders, wraps for sat monitor…they have really cute trach holders…hope you can get a few extras http://neotechproducts.com/home.php
here is a link that another mom sent me, it is a medical supply company that will send out FREE samples, even to parents. I have gotten 02 nasal canula holders, wraps for sat monitor…they have really cute trach holders…hope you can get a few extras

]]> By: Tammy & Parker http://prayingforparker.com/emergency-preparedness-and-the-child-with-special-needs/comment-page-1/#comment-429761 Tammy & Parker Thu, 04 Feb 2010 18:53:10 +0000 http://www.prayingforparker.com/?p=2052#comment-429761 Kadiera, Tell me more about this portable oxygen concentrator.... :D Parker's vent does have a back up battery. We've even thought of purchasing another one. You know, just as soon as our money tree takes off. sigh. Kadiera,

Tell me more about this portable oxygen concentrator…. :D

Parker’s vent does have a back up battery. We’ve even thought of purchasing another one.

You know, just as soon as our money tree takes off. sigh.

]]> By: Tammy & Parker http://prayingforparker.com/emergency-preparedness-and-the-child-with-special-needs/comment-page-1/#comment-429760 Tammy & Parker Thu, 04 Feb 2010 18:51:34 +0000 http://www.prayingforparker.com/?p=2052#comment-429760 You know, Mir, I'm pretty sure I have. I know when stuff goes out around here I call and remind them of Parker's needs, but I should call and make sure they have actually 'red flagged' us. Thanks for the reminder! You know, Mir, I’m pretty sure I have. I know when stuff goes out around here I call and remind them of Parker’s needs, but I should call and make sure they have actually ‘red flagged’ us.

Thanks for the reminder!

]]> By: Tammy & Parker http://prayingforparker.com/emergency-preparedness-and-the-child-with-special-needs/comment-page-1/#comment-429759 Tammy & Parker Thu, 04 Feb 2010 18:50:35 +0000 http://www.prayingforparker.com/?p=2052#comment-429759 Heather, The bags really are special needs bags, they just make really great bags for kids with special needs. They are total work horses! Heather,

The bags really are special needs bags, they just make really great bags for kids with special needs. They are total work horses!

]]> By: kadiera http://prayingforparker.com/emergency-preparedness-and-the-child-with-special-needs/comment-page-1/#comment-429755 kadiera Thu, 04 Feb 2010 17:54:29 +0000 http://www.prayingforparker.com/?p=2052#comment-429755 We have friends who work for a phone company that have access to an internet data center with large diesel backup generators and a fuel contract. we've been offered shelter there if needed. One of our best out of pocket purchases has been a portable (airline approved) oxygen concentrator. It has batteries and a 12 volt car plug, in addition to the wall plug. We've also built a battery pack for our vent that will let it run on D cell batteries. We felt they'd be easier to get in an emergency than a way to recharge the car battery that came with the vent. We have friends who work for a phone company that have access to an internet data center with large diesel backup generators and a fuel contract. we’ve been offered shelter there if needed.

One of our best out of pocket purchases has been a portable (airline approved) oxygen concentrator. It has batteries and a 12 volt car plug, in addition to the wall plug.

We’ve also built a battery pack for our vent that will let it run on D cell batteries. We felt they’d be easier to get in an emergency than a way to recharge the car battery that came with the vent.

]]>