Parker adores going outside.  Often I’ll bundle him up and take him on our front porch to hang out in the raindrops for a few minutes or give him a lesson on how to catch snowflakes in his mouth.
The weather right now is too cold to keep him outside long. Cold air, chronic lung disease and trachs don’t mix well.
We raised up the blinds on the window that leads outside from our dining room to make a sunny spot for Parker to keep tabs on all the excitement that goes on in our backyard.
Okay. Maybe excitement is a bit of an exaggeration. But I do toss out handfulls of birdseed to attract the birds for Parker’s veiwing enjoyment.
Reed and I dream about creating a place wonder and magic for our Brave Hero. A swingset and jungle gym made to fit his unique needs. A child’s garden for butterfly watching, and green bean tee-pee growing.
One day this kid is going to be healthy enough to run and play and be a boy. Our faith that this blessing will take place is strong.
Until then Parker will keep watch at the back door. A place for us to dream together.
And for those of you who have been following our story of Medicaid cuts and the state of Utah go and check out this article that ran in the Trib.
We’re still banging our drum. I’ve left a voice message for Rep. Dougall inviting him to our home to meet Parker. I’ve also touched base with Sam Penrod from KSL news.
There is a meeting on Wednesday between lawmakers and special needs advocates, but I won’t be able to attend. Reed’s sweet Dad isn’t expected to be with us much past the next few days and Reed and my children are spending as much time with him as possible. I’m trying to support Reed by staying and caring for Parker so he can be with his much loved Dad.
Hi Sweetie
I am so sorry about Reed’s dad
Your whole family is in my prayers. Big Hugs to you all too.
Your dreams for Parker are so beautiful Tammy! I can just picture him outside enjoying everything, A butterfly garden would be so fabulous! I have been doing a lot of dreaming by the door too lately. Let’s hope for an early spring
I LOVE that you invited that Rep. over to visit Parker! I wish he would have the b**** to take you up on it! One look at that beautiful baby and he would undo all the damage he is doing!!
Much love,
Amy
Keep dreaming big Parker and one day you can live those dreams.
Big hugs
This is a beautiful website for Parker. You and Parker are in my family’s prayers.
Kristy Robinson
(Steve’s youngest daughter)
I’m very sorry to hear about your father in law. I hope your family can catch a break soon.
I will send prayers that someone will listen at the meeting on Wed.
Take care
Great article! Amazing that these children aren’t put first. My prayers are with your family and Reed’s dad.
Prayers for you FIL. Parker is such a sweet boy
So sorry to hear about Reed’s father.
As for Mr Parker, I hope his dreams come true! The indoor swingset/jungle sounds fab!
Sweet photos! Keep dreaming, baby boy! Praying all your dreams come true…
So sorry to hear about Reed’s dad.
I was glad to see the trib had something about medcaid. I haven’t found anything on Desnews or ksl.
I sent emails to my reps–no one responded!
I’m dreaming with Parker.
Praying with your family for comfort and peace in your FIL’s days and your family’s hearts.
And I must applaud you for your advocacy on behalf on many re Medicaid.
Miss ya, friend. ox
Thank you very much for the links. It was a great commentary in the SLC Tribune.
It is so sweet to see the photos of Parker looking out the window. I hope that you will be able to fulfill your dreams someday of an outdoor play area for him.
Praying and thinking of you, hopefully one day VERY soon he will be up playing with the best of them!
Your father in law is in my prayers…as is your hubby and children God Bless
I will pray for a peaceful passing for Reeds Dad .
I love that picture of Parker looking outside. So beautiful. I sat and looked at it – wondering just what exactly he was seeing.
You go, girl. Fight for your son.
Twitter: therextras
says:
Praying for Parker, and all the men in Parker’s family.