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I’m so sorry to hear that Parker didn’t recieve good results from the last round of tests. Praying that the antibiotics kick in and get rid of the infection. I can’t pretend to know what it is like to have a medically fragile child, but my heart aches for you and Parker…he’s always in my prayers.
Words. People just carelessly throw their words out there without even thinking of the damage they do, of the pain they cause. I’m appalled that anyone thinks asthma compares to the challenges Parker faces. I know asthma is serious. I do know that and I’m not downplaying the seriousness of it. But my word, what on earth was that woman thinking when she chose to JUDGE you? Truly, I’m amazed she could be so thoughtless and downright cruel with her words. God help her if she ever finds herself in your position.
I have no idea how you maintain. Well, that’s not entirely true. You do every single thing you have to do to just keep Parker going because no matter what his challenges are, he’s your child and you love him. She has no idea what your life is like. She has no idea what Parker’s life is like.
So although I know you probably can’t, I so wish you could just give her opinion exactly what it’s worth. Absolutely nothing. Not one moment of your time.
Ohhhh. This made me angry. Of course I’m praying for Parker. But I’m praying for her, too. She could use some very serious prayer. Her heart is not in the right place. At. All.
My heart goes out to you. I have encountered both sides of this. My husband has severe asthma triggered by many everyday things, like dander. My kids have food allergies meaning that they often can’t have what others have. We hear lots of negative opinions beause others don’t understand how bad of an attack sitting beside someone who owns a dog can be. I often get ckudos I don’t deserve from other mothers who “can’t imagine how I do it all.” As a former special ed teacher who worked with those with severe disabities the inability for others to “get it” amazes me. I praise the Lord that my kids are healthy, that my husband stays healthy. I have seen too many that weren’t and admire those of you who work so hard to take care of the child God has given you.
He is in control and He loves your child even more than you do. (You know that of course.) My prayers are with you.
I don’t know how you are doing it… I admire you for your strength. My prayers go out to you and your family.
Tammy, I sit here and read this and I cant even imagine what you go through day after day with sweet Parker and all his health issues. To me, you are an inspiration to all of us…. Dont let what one little person says get to you. Its not worth it!!! We all know how special of a mommy you are!!!!!
I completely understand what you are saying. People that have critically/chronically ill children should know better than to judge or to keep some sort of “tally/score” as to which child is sicker or how the situation should be delt with!.
I am learning that when there are times of difficulty you really find out who are your friends or whom you can trust with your most deepest of emotions. I feel it is a gift to someone when you share with them. If they do not cherish/appreciate what you have given, then you know then that they will not be there for you, regardless of the situation.
I do not have a chronically ill child but have had some major scares with both of my children. I wanted to tell you that I am praying for your family and for Parker. I hope that you continue to Share as many of us want to be able to keep praying for your specific needs. Continue to use this blog as your way of expressing your Hope and Fears and Frustrations. You are in my thoughts and prayers.
Peace Be With You~~~Kim
p.s I apologize for blabbering on I simply want you to know that you are thought of.
No words- You know how I feel, and you know I understand. There is a big difference- Huge.
Hug that boy
-H
I hope Parker is feeling better soon! I will be thinking of you!
I sit here in tears, people just don’t get it. I wish sometimes that just for a small moment in time everyone could see what others have to do to maintain. You not only have what is going on in Parker’s life but also as a mom, you have to maintain that balance that is so hard to do. I want you to know that I am praying for you to have strength and that you and your family will have courage. That there is a hedge placed around your ears and your heart that no one will be allowed to let hurtful things be said to you and that you will only hear those things that are an encouragement to you. I also want you to know that you and your family are in our prayers every moment of every day.
Hugs to you
Debra and Hope
Oh, sweetie! What can I say? People are jerks.
And BTW my daughter has excema, which is way worse than Parker, because sometimes I have to put lotion on it, and sometimes I forget, and then she went and got a fungus on her feet, which requires more lotion, but it’s a DIFFERENT KIND, so I know exactly how you feel, keeping track of all those meds! It’s exhausting.
Love to you….
I am not really a prayerful person. Parker has moved me to pray. Feel better soon little one.
I’m sorry this woman felt the need to pass judgement upon you. That’s the last thing you need right now.
I have no experience with raising a medically fragile child, but I was a medically fragile child myself and it’s only now, as an adult, that I begin to comprehend the anguish, terror, and struggles my parents had to go through with me being in and out of the hospital for life-threatening surgeries since the day I was born. Oh, and the medical bills piled up quickly for them as well, even with 80/20 insurance coverage. It took them YEARS to pay off those bills, mainly because they were only able to send in marginal payments each month while they tried to support the rest of the family (there were 5 of us kids total).
You hang in there, okay? You have a lot of people praying for Parker, for you, and for your entire family. Keep fighting the good fight for your precious son and try not to let those that don’t understand get under your skin.
This is my first post to you. I am praying for your family. I have been blessed to have healthy children and grandchildren(thank you Lord)but i think i have an idea of what your going through. All i can say is “Bless your heart” you are doing all you can. That cruel minded person needs to get on her knees and thank God that her child is as healthy as they are. I will keep Parker in my prayers.
AMEN! The clueless should keep their mouths shut! Even those parents of children with special needs who are medically-stable don’t have a clue what goes into parenting the medically-fragile child. It’s a totally different ballgame – and a very stressful one at that.
Every moment you spend with Parker is irreplacible. Those people who tell you that you’d be better off doing something else – IGNORE THEM! They have no clue what your life is like, how precious each moment is, or that there is nothing you’d rather be doing – even though you have your moments of daydreaming about what you’d go do for yourself if Parker was “normal” – whatever that is.
Keep on keeping on, my friend. I’ll be praying for Parker’s miracle (a healthy body) and for yours (a healthy child and open eyes for the lessons of the journey).
From a mom who has been there and done that, said good-bye, and survived it all by the grace of God.
It looks like I’m the only one responding who’s done this. Look at our story (the blog link) and email me if you’d like to talk – or vent.
My heart goes to you, Parker…
And thanks for visiting my WW.
BTW I owe you one explanation about the burning TV. I’ve made a post about it. Please come and check out.