***Update to the Udate:
Parker has been in the cath lab for about an hour now. He was so not happy when he saw where we were. He fought every nurse that came anywhere near him.
That’s my boy. 
They finally gave him some verscet,(sp) cause they needed to be able to get close enough to Parker to be able to put an IV in.
Reed and I are trying our best to be upbeat, but really the worry is kicking our butts. We just want so much to be able to have hope that Parker’s life plan includes some serious time with us HERE. I know families are eternal, but I want to be able to raise this kid HERE. And, yes, I can be selfish when it comes to things like this. I freely admit it.
I am really wishing I had just called my GP and asked for one Xann*x. Just one. But then I thought I should just put on my big girl panties and be strong.
Not my best call of the week. sigh……
Never once have we blinked an eye at the extra chromosome. Never once have we felt anything but thankful for this amazing soul we have been given stewardship over. We are willing to do whatever it takes to realize the amazing potential that Parker was born with.
But losing him would simply be more than we could bear.
Please keep praying for good news.
**Update:
Our check in time tomorrow is 1:00. I was surprised at how late it was. This means that we will be there until the wee hours of Wednesday morning as after the procedure Parker has to be kept still and and flat on his back.
I spent today madly cleaning and getting laundry caught up. I’m thinking that the cleaner my house is the better chance we have of getting good news tomorrow.
Or not.
I told you I was a bit of a mess.
We are going to spend Family Night tonight watching Enchanted. I’m going to pop up a bunch of what my kids call ‘old fashioned’ popcorn. You know, the kind you pop on the stove with oil in the pan. You’d think I’d just invented sliced bread or something.
And you would be proud of me. Instead of reaching for a giant sized bottle of Dr. Pepper today I’ve kept myself on plan. I’ve set a goal and I’m sticking to it.
**
The worry has been there for several weeks now. But I’ve worked hard on keeping it at bay. As tomorrow has gotten closer I’ve felt the fear in the pit of my stomach, growing stronger and weighing my heart down.
Tomorrow’s right heart cath will reveal whether or not traching Parker has done it’s job and brought down his Pulmonary Hypertension levels.
It will let us know if we can finally plant our seeds of hope for a long future with Parker. The results from Parker’s last right heart cath were grim. They spoke of a severely shortened life span, of a childhood cut way too short.
My anxiety levels climb even contemplating losing this most amazing of brave souls. All I want to do today is crawl back under the covers and lose myself in the sleep that so effectively evaded me last night.
I’ve been holding this verse close to my heart:
“There can be miracles when you believe…For with God nothing shall be impossible†Luke 1:37
“Believe” That is my mantra. My hope. What keeps me going on days like today.
And from Psalms 139:13-16
For you created my inmost being;
You knit me together in my mother’s womb.
I praise you because I am fearfully and wonderfully made;
Your works are wonderful,
I know that full well.
My frame was not hidden from you
When I was made in the secret place.
When I was woven together in the depths of the earth,
Your eyes saw my unformed body.
All the days ordained for me
Were written in your book
Before one of them came to be.
Karen, from Pediascribe, sent us a beautiful hand crafted angel to keep watch over Parker:
Just so you know the actual cross stitch is absolutely FLAWLESS. My photography skills that could use a bit of help.
Last night Reed and my Dad gave Parker a Priesthood blessing. How thankful I am for worthy Priesthood holders. How thankful I am for my testimony of a loving Heavenly Father, and my knowledge that families are eternal.
We are asking for prayers today…..lots of them. Prayers to safely see Parker through this procedure tomorrow. Prayers to ask our Father in Heaven for good results and feedback. And prayers for the promise of a long and happy future with our son.
Thank you so much for your love and support. It means the world to us.
You got them all the time, but more now!
Love and hugs!
Kay
Prayers & love, hugs, positive thoughts, vibes and even more prayers.
Kei
Sending prayers. I’ll fast tomorrow for Parker, too. I dearly wish I could be there to hold your hand.
Many many prayers for Parker and all of you!
Hey, I used part of that verse on the back of the angel! How wonderful that it’s one you draw on for comfort.
Prayers and hugs for you and Parker too!
Sending prayers your way!!
It’ll be fine. You’ll see. Praying always.
Tammy – I’ll be praying for a safe procedure and positive results. Remember Parker and Noah are destined to build that sandcastle together ….Hugs& Kisses Terry
I am praying for Parker and your whole family.
I have followed Parker’s blog for a while. As a member of the church, I have drawn strength and faith from your testimony as you give all around you a shining example of a true daughter of our Heavenly Father and the kind of mother he would like us all to be. You all will be in our prayers. Thank you for allowing me to follow your faith-driven path and witness the miracle of Parker.
Twitter: livingingrace
says:
Tammy, I can’t begin to imagine how you and Reese feel. I just can’t. I only know that God has Parker in His hands, and His life was ordained from the beginning of time. Not knowing is scary. That I can relate to. But, you’re right. We can only cling to the belief that God has our best in mind.
I’m praying for you, sweet friend and wish I was there to just sit with you. Consider yourself hugged and loved.
Oh Tammy, my heart just aches for you. I feel so helpless and want to do so much. I will pray for you and for sweet, innocent little Parker who has had to work too hard and deserves some peace and comfort.
I love you and Parker and your family and not a day goes by that I dont think of you and hope for you.
All my love,
Amy
I will be praying for sweet Parker and you too as he goes through the heart cath tomorrow. I do believe in that boy of yours! He is going to amaze us all! HUGS to you both. I’ll be checking on him tomorrow.
Barb and Michael
Im praying for Parker and you.
Thinking of you and keeping you close in our hearts; hoping for good numbers…we believe.
ps Hope the gang enjoyed Enchanted and the high-tech popcorn!
Debbie and Binny
Extra prayers for Parker, and for his mama. I can’t even imagine what you must be going through right now. Keep the faith, Parker is such a fighter. Nothing but good news tomorrow..
You’re in our prayers.
Praying for Parker and for the rest of you, too.
We will all be praying for all of you, and especially Parker. I hope you get good news tomorrow.
saying a prayer for sweet parker and sending hugs your way!
Parker is most definitely in my prayers..as are you for peace and calm (I know my nerves would be shot too!) and for the drs that they have steady hands performing this procedure. Prayers for positive results too!
I’m praying right now for a good report tomorrow. I’m also praying that God will give you amazing peace all through out the day.
Love in Christ,
Sue
Many prayers…and lots of (((HUGS))) Stay strong mama.
When You Believe….
http://youtube.com/watch?v=_l-WFi6wWjs
Lots of people Believe in Parker. At times like this I often put this song on repeat.
Good luck.
you have my prayers every single night but even more now. God will hold tight to little Parker and see him through this. keep the faith……internet hugs and love….Nina
Keeping good thoughts for Parker, and for your whole family.
Sending EXTRA prayers your way. I will be sure my “Angel” Courtney is watching over precious Parker today..Kisses from Sydney
Denise
Oh, how i hope things go well today. Take deep breaths, and relax. We’ll keep praying for Parker.
Praying for you guys today honey.
Prayers and more prayers….and a little added to the Parky Pot so you can buy that little guy whatever he might need for his return home with GOOD news.
We will be keeping you all in our thoughts and hope the best! Good luck little guy!
Many, many prayers for you and Parker today.
Tammy… lots and lots of prayers for you! I hope everything is smooth as silk!
Tammy, you go right ahead and be selfish!!! You have every right! You have been nothing but thankful for Parker and everyone knows this. I am praying for you ALL.
Much Love,
Amy
Hugs, Tammy. I keep checking in. Since he’s been there an hour, I hope that means things are underway.
We are praying for you guys. Just remember to BELIEVE.
We love you guys.
Pam and Rhett
Sending prayers for Parker and peace and hope for mom and dad…
Hugs to you all.
We pray everyday – praying harder today.
hugs!
Tammy, I’ve been thinking about Parker [and you] all day….praying for your sweet little boy. That angel is just beautiful.
All of our love, TM & ES
Been thinking about you all day Tammy and praying for great news for your cute boy!!! Sending lots of hugs and prayers your way!!!
I have not been here, but I knew the date. My prayers have been long and deep. Parker is a treasure to me, and I’ve not even met him. I can only imagine how blessed you are to be his mother.
Love you guys. ox
Hang in there! You will be in my prayers.
Parker is always in my prayers!