The State of Illinois and the lives of medically fragile kids with special needs.

We’ve all had the experience of needing to cut our household budgets.  We go, line by line, over each dollar spent and where. We put that new pair of shoes off until later.  The pair we have now will last a few more months.  Who really needs this many television channels?  Do we really need… [Continue Reading]

Making Medicaid More Transparent: A Question From A Utah Legislator

I was asked to get opinions on this idea by a Legislator.  I will be sharing your comments with this Legislator, so now is your time to allow your ideas to be heard.  When struggling with accountability within the welfare system the lack of transparency (where the money is going and on whose behalf?) makes… [Continue Reading]

Connor Boyack and the life of my son.

Many times I’ve been tempted to write the Utah tourism association and explain that they should  change their slogan from ‘Greatest Snow on Earth’ to ‘As long as it’s YOUR kid that has to die then it’s all good.’ Allow me to explain. On Twitter I follow a few people I don’t totally see eye… [Continue Reading]

What makes Down syndrome so terrifying?

Obviously I missed the memo stating that effective immediately, the most important prerequisite of giving birth to a child is perfection. Oh, I know of Denmark’s Copenhagen Post projection that by the not too distant future Denmark could be a country without a single citizen with Down syndrome. How?  Well, by offering all pregnant women… [Continue Reading]

What is the worth of a life?

As I stood watching a medical team make an assessment of  Parker’s many issues after his first life flight to Primary Medical Center, a Pediatrician made his way toward me and shared this bit of reality: Over 50% of all marriages end after the birth of a child with special needs. Over 50%. This was… [Continue Reading]

Stop SOPA