Our ‘extra’ oxygen concentrator died today. Well, at least we received word of it’s death. There is a ‘possibility’ of it’s resuscitation, but no guarantee comes with the $800 bucks they want to attempt to breathe life back into it. It’s a make and model that is not even made anymore, and this time next… [Continue Reading]
Nobody Ever Said It Would Be Easy
Apr 12, 12 By · 3 Comments
When Parker was born nobody told me that raising a medically fragile child with Down syndrome would be easy. I could spend my time complaining and bemoaning and all kinds of weeping. Instead I’ve chosen to empower myself by taking the best care of Parker that I possibly can. Yup. That’s right, empower. The more… [Continue Reading]
Ignorance: It begins in the medical manuals.
Apr 9, 12 By · 20 Comments
90% of all prenatally diagnosed unborn children with Down syndrome are aborted. NINETY percent. That leaves only 10 percent given the opportunity to take their first breaths. Perhaps it has to do with the way the diagnosis is delivered. Misinformation begins early. Here is a page taken from a currently in use NURSING book published… [Continue Reading]
The Works of God and My Kid with Special Needs
Apr 1, 12 By · 2 Comments
Mormons reading this will know what I am talking about when I say this weekend was the LDS General Conference. Twice a year the entire Church gathers via the web, television, radio, and in person to hear timely words of hope and inspiration. During the Sunday sessions we hang out in our jammies, taking notes… [Continue Reading]
Stomach Viruses and the Kid with Special Needs
Mar 30, 12 By · 2 Comments
For most Moms the stomach flu comes with extra loads of laundry and puke bucket patrol. But for this Mama any kind of stomach issues come with the fear of aspiration.…..and aspiration pneumonia. This means that when Parker pukes his chances of the contents of his stomach going into his lungs is huge. Parker has… [Continue Reading]
Zombies, generators and my electricity dependent kid.
Mar 27, 12 By · 6 Comments
It’s begun. A drawer by drawer, closet by closet, room by room Spring Cleaning Excavation to amass a huge mountain of treasures for our yard sale. This is only a wee part of the beginning. Less than two rooms. It’s amazing how much stuff you can collect when you have as many kids as I… [Continue Reading]
