Parker was almost up to 37 pounds. So very close. The weight gain happy dancing was in full force. Then he got sick. Pneumonia. Pseudomonas. That damn Adenovirus that came with a 12 days of diarreha and zofran just to keep the meds down. Before we we knew it Parker had lost down to skin… [Continue Reading]
Weight Gain and the Child with Special Needs
Filed Under: Blenderized Diet, Frequent Flyin' ar the PCMC, Life With Special Needs
The Freedom To Tell It Like It Is: Special Needs Style
I once heard of a woman, who after years of taking care of her disabled sister, made the following confession: “I hate having to cut her toenails. ” You could have heard a pin drop in the room after that simple sentence had been uttered. Because caring for an individual with special needs should be… [Continue Reading]
Life in the Medically Fragile Lane
I think sometimes people raise a mental eyebrow when I tell them that Parker is a full time job. An often exhausting full time job. I create med and feeding lists each month. Yup. They change that often. Putting together a new one each month also allows me to go back in time and… [Continue Reading]
It’s because I know what COULD happen…
that tends to make me a little freaked when Parker gets sick. As a new parent of a medically fragile child with special needs I was familiar with typical childhood stuff. Chicken pox. Colds. A broken arm and two rounds of stitches. But then Parker was born and suddenly things I didn’t even know… [Continue Reading]
Filed Under: Frequent Flyin' ar the PCMC, Life With Special Needs
On Hawk Walks, Brave Heroes, Weird Rashes and Pulse Oximeters
The stage was set for a magnificent day. My kids had even talked their Dad into letting them join Parker for his very first Highland Hawk Walk. The 16 year old felt it was important for him to be there in case Parker got tired and needed someone to carry him a lap or two. … [Continue Reading]
Filed Under: Frequent Flyin' ar the PCMC, Life With Special Needs
