There are days when trying to get Parker to focus and pay attention to the task at hand is a huge experience in futility. I teasingly refer to it as ‘Goofball Mode’ It’s when Parker simply starts…well, acting like a Goofball. Twisting his body from side to side. Giggling. Going from a limp noodle to… [Continue Reading]
Fresh Courage Take
Feb 19, 12 By · 2 Comments
Inspiration for the week ahead. I’m a lover of positive quotes. I enjoy finding a new one each week and kind of using it as my ‘theme.’ It helps to keep me focused. It helps to keep me uplifted. It helps to get me through the week. When my kids were little we’d pick a… [Continue Reading]
Communicating with my non-verbal kid.
Feb 15, 12 By · 6 Comments
I’ve changed things up with Parker’s communication invitations lately. They aren’t the the perfectly set up displays I once created. Instead I have a basket of toys that change every few days. They stay the way Parker last left them, awaiting his return and the next time we spend communicating. Parker telling me via… [Continue Reading]
Valentine for a Hero
Feb 15, 12 By · Leave a Comment
Those that live at my house know that this Cupid isn’t a fan of baking sugar cookies. The rolling. The cutting out. It seems to take all day. So coming home to hot from the oven Valentine Day cookies was recognized as a labor of love. The cookies devoured in a heartbeat. Because of Parker’s… [Continue Reading]
The State of Illinois and the lives of medically fragile kids with special needs.
Feb 14, 12 By · 7 Comments
We’ve all had the experience of needing to cut our household budgets. We go, line by line, over each dollar spent and where. We put that new pair of shoes off until later. The pair we have now will last a few more months. Who really needs this many television channels? Do we really need… [Continue Reading]
So Can I.
Feb 9, 12 By · 4 Comments
Deep down inside, in a place where the spirit whispers to your heart, I had this knowing that Parker was going to be born with Down syndrome. After his T&A. Taking into account my ‘advanced maternal age’ and the length of Parker’s femurs, we were given odds “good enough to take to Vegas” in terms… [Continue Reading]
