Wednesday was Parker’s first official day of school. Well, kinda. He arrived at 10:30 and left at 11:30. Yup. One entire hour. Considering Parker’s health, I think that’s pretty remarkable…..for me that is. (ahem) We did all the usual first day of school stuff: The Traditional First Day of School in front of our front… [Continue Reading]
But will we still be smiling after tomorrow’s echo?
Apr 25, 12 By · 6 Comments
Thursday morning will find Parker with EKG probes on his chest and covered in ECHO goo. Yup, it’s time to visit the cardiologist again. Words can’t describe how much I hate these appointments. If it were possible to send Reed while I stayed home tomorrow, I would……with my bottle of valium clenched tightly in my… [Continue Reading]
Behaviors of the concerning sort.
Apr 12, 12 By · 8 Comments
We’ve noticed some behaviors our Brave Hero is sporting lately that are a bit concerning. Little things, that are at the same time big things. Like Parker’s car seat. Parker LOVES to go for rides in the car. I used to feel guilty seeing how excited he was to get into his car seat, with… [Continue Reading]
Nobody Ever Said It Would Be Easy
Apr 12, 12 By · 3 Comments
When Parker was born nobody told me that raising a medically fragile child with Down syndrome would be easy. I could spend my time complaining and bemoaning and all kinds of weeping. Instead I’ve chosen to empower myself by taking the best care of Parker that I possibly can. Yup. That’s right, empower. The more… [Continue Reading]
Upper GIs, FEES studies, and keeping our Hero safe.
Apr 6, 12 By · 10 Comments
I have a sick kid today. A really sick kid. I’m hoping I can keep his lungs safe enough to keep him out of the hospital the next few days. We took Parker in on Wednesday for an Upper GI. I worry about his Nissen when he throws up over it as easily as he… [Continue Reading]
The Works of God and My Kid with Special Needs
Apr 1, 12 By · 2 Comments
Mormons reading this will know what I am talking about when I say this weekend was the LDS General Conference. Twice a year the entire Church gathers via the web, television, radio, and in person to hear timely words of hope and inspiration. During the Sunday sessions we hang out in our jammies, taking notes… [Continue Reading]
