There is a story I’ve been told since I was little that I read to my kids when they were little. It’s a story about a man’s dream in which he saw a great and spacious building, a path following a river, a mist of darkness, a rod that led through the mist of darkness,… [Continue Reading]
Herding Cats….and Giving Thanks
Feb 12, 12 By · 3 Comments
When my kids were little people used to always tell me not to worry, that as they got older things would get easier. They lied. I’ve been trying to get these pictures taken and posted for a few weeks now. I had them once, and then somehow deleted them off my camera. I had others,… [Continue Reading]
Even if the rest never follows.
Jan 24, 12 By · 8 Comments
Sometimes the once upon a time me sneaks up and reminds the me in the present of goals set and dreams once dreamt. She reminds me that debt and doctors and pulmonary hypertension were never supposed to be part of our future, and that when my kids finally reached they age they have I… [Continue Reading]
Sometimes it’s okay to ask for less.
Jan 5, 12 By · 5 Comments
Reed and I aren’t great at answering the phone. If there isn’t a kid around to answer it for us we’ll often just pretend we don’t hear it ringing, unless we are pretty much sitting right on top of it. Guess where I was sitting last night? After noticing that it wasn’t a political call,… [Continue Reading]
Post Traumatic Stress Disorder and the Special Needs Parent
Dec 7, 11 By · 19 Comments
I’m a huge believer that many special needs parents suffer from Post Traumatic Stress Disorder. My beliefs are backed up by both my therapist AND my GP. (Did I just admit to working with a therapist? What can I say? There are somethings a girl can’t work through on her own.) Yup, PTSD isn’t just… [Continue Reading]
Trying to calm my fears.
Oct 12, 11 By · 3 Comments
“There comes a time when you have to choose between turning the page and closing the book.” Yesterday I made the choice to close the book. I’ve been in a flux over the agency we’ve been going through for Parker’s nursing hours. Truthfully, we really only stayed because our day nurse had become not only… [Continue Reading]
