Comments on: Bummed http://prayingforparker.com/bummed/ Raising a Special Needs Kid in a Typical World Sat, 04 Feb 2012 01:07:25 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Ann http://prayingforparker.com/bummed/comment-page-1/#comment-342703 Ann Wed, 03 Sep 2008 17:41:03 +0000 http://www.prayingforparker.com/?p=562#comment-342703 You and Parker have my prayers, too. I don't have any personal experience with G-tubes, but as I've been traveling across the blogosphere, I came across this site: http://www.reflux.darshani.com/ She has had a lot of years experience with several different types, and has some suggestions that may apply. Or not. Big hugs to you and Parker. You and Parker have my prayers, too.

I don’t have any personal experience with G-tubes, but as I’ve been traveling across the blogosphere, I came across this site:
http://www.reflux.darshani.com/
She has had a lot of years experience with several different types, and has some suggestions that may apply.
Or not.
Big hugs to you and Parker.

]]> By: Michelle http://prayingforparker.com/bummed/comment-page-1/#comment-342581 Michelle Wed, 03 Sep 2008 12:46:41 +0000 http://www.prayingforparker.com/?p=562#comment-342581 Sending up lots of prayers for Parker and your family :) Sending up lots of prayers for Parker and your family :)

]]> By: melody is slurping life http://prayingforparker.com/bummed/comment-page-1/#comment-342437 melody is slurping life Wed, 03 Sep 2008 04:37:45 +0000 http://www.prayingforparker.com/?p=562#comment-342437 Prayers and love, always. Prayers and love, always.

]]> By: Christine http://prayingforparker.com/bummed/comment-page-1/#comment-342337 Christine Wed, 03 Sep 2008 01:08:26 +0000 http://www.prayingforparker.com/?p=562#comment-342337 No words of advice about the G Tube, but know we're praying for you...always. You and Parker are our brave heroes. ((((Hugs))))) No words of advice about the G Tube, but know we’re praying for you…always. You and Parker are our brave heroes.

((((Hugs)))))

]]> By: Lynnette http://prayingforparker.com/bummed/comment-page-1/#comment-342333 Lynnette Wed, 03 Sep 2008 00:43:43 +0000 http://www.prayingforparker.com/?p=562#comment-342333 Tammy, When Brooke was young, even younger than Parker, she had trouble gaining weight. In time that issue took care of itself. Weight is no longer a problem (she's 10 now and average weight). I would consult a dietician about his formula and discuss the problem with her. Brooke has beneprotein supplements added to each feeding (she eats pediasure). What formula is Parker on? As for the tube leakage, I agree with the others that there could be a size issue. I have also had trouble with certain brands before. Is it leaking around the site or through the top of the button or both? It may be that his balloon needs to be a little overinflated (more than the usual 5cc) to get a better fit. In our case, Brooke's balloon has to be underinflated because it's too tight and rubs, causing irritation. hang in there . . . Tammy,
When Brooke was young, even younger than Parker, she had trouble gaining weight. In time that issue took care of itself. Weight is no longer a problem (she’s 10 now and average weight). I would consult a dietician about his formula and discuss the problem with her. Brooke has beneprotein supplements added to each feeding (she eats pediasure). What formula is Parker on?

As for the tube leakage, I agree with the others that there could be a size issue. I have also had trouble with certain brands before. Is it leaking around the site or through the top of the button or both? It may be that his balloon needs to be a little overinflated (more than the usual 5cc) to get a better fit. In our case, Brooke’s balloon has to be underinflated because it’s too tight and rubs, causing irritation.

hang in there . . .

]]> By: Harmonie http://prayingforparker.com/bummed/comment-page-1/#comment-342222 Harmonie Tue, 02 Sep 2008 22:54:08 +0000 http://www.prayingforparker.com/?p=562#comment-342222 Hugs and extra prayers from us. Hugs and extra prayers from us.

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