Parker decided that he had spent enough time in a highchair, thankyouverymuch. When we ate at the table he wanted to eat at the table too.
So we went broke out the big kid chair. More like a booster seat that allows Parker to be at the perfect table height.
The better to launch his mashed potatoes, don’tcha know.
Ahem.
What I am loving is how Parker is wanting to eat by mouth lately. Oh, we still have a ways to go before the marjority that goes into his mouth stays in his mouth, but if you only knew where we started the journey at, you would understand our excitement.
One of the biggest struggles with having such a medically fragile child as Parker has been forgetting to have fun. I know it sounds impossible for somebody to forget to have fun. But it happens. The worry. The fear. They can block out most everything.
It makes me sad that my other kids may grow up thinking that I turned into such a dud of a Mom after Parker was born.
The balance between the medically fragile with special needs and the typical can be overwhelming.
.
I remember someone once telling me that surviving is important, but thriving, thriving is elegant. I figure that I can try the whole thriving thing. What do I have to lose?
I know that if I reach down deep enough and pray sincerely enough that I can find the strength I need to thrive.
And that, is just what I intend to do.











Just look at that big guy!! Yay Parky! It wont be long and he will be enjoying eating all the time!
I love that little guy
Hugs to all,
Amy
What a lovely post. Thriving is elegant. I will have to remember that.
That looks like a great solution!
I needed this today – thank you!
I can so relate!
Twitter: kadiera
says:
Some days, surviving is all we can manage. The days we thrive usually surprise us in hindsight, because we were so busy just living
We’re getting discharged from the hospital next week!
Twitter: therextras
says:
I think you show a lot more thriving than you are aware of….your searches for toys that stimulate and teach Parker are expressions of way-beyond-surviving.
I bet your older children bring the fun into the survival situations for you sometimes. Perhaps that is part of God’s intention – ?
Maybe part of the reach for you is to let others help you both thrive. No doubt you will get some blog-help here.
Parker and family are in my prayers.
I think we are beginning to go down the same road, Tammy. I’m scared of the road. Our seven-year old has been at grandma’s house for over a week. Our baby has been left to hold his own. Not literally, of course, but I really have little time to even snuggle with him.
Jeff and I talked about this last night. Where is the fun? Elliot only knows florescent lights, tubes, alarms and pokes. For Elliot, a car ride has been fun.
We’re trying to find the balance too. “Thriving” just has to happen. I know you’ll get there too.
Hug that big table eater for me! How cute he is in the big boy chair!
So happy to see that Parker is doing so well
It seems like there’s such big changes since I first started reading about him. Can’t wait to see what other adventures you guys get into!!
I think that the way you’ve gone above and beyond to keep Parker stimulated and interested is completely inspirational.
And look at him sitting in his big boy chair! So cute.
Oh you can do it! I remember Wil’s medically fragile days…and days when he wasn’t/wouldn’t/couldn’t eat by mouth…and forgetting to just have fun.
You guys are and will do it! Have that fun!
Look how big he is! How is he doing lately?