What I feed my g-tube enhanced kid.

My g-tube enhanced Brave Hero has done so well on the blenderized diet I prepare for him daily. He lost a significant amount of weight from being sick so many times this season, but we are back up 2 pounds…..two more to go before we are back to his baseline! I use this for Parker’s… [Continue Reading]

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Snow Painting

It happened.  Finally.  It snowed.  Snow.  Finally Not so much as to be a hassle.  Not too little to notice. Just enough. Snow used to be a sensory nightmare for a certain Brave Hero. It’s better now. Except that gloves aren’t tolerated. Even if hands are cold to the verge of frozen. Instead my littlest… [Continue Reading]

praying for parker

Even if the rest never follows.

Sometimes the once upon a time me sneaks up and reminds the me in the present of goals set and dreams  once dreamt.   She reminds me that debt and doctors and pulmonary hypertension were never supposed to be part of our future, and that when my kids finally reached they age they have I… [Continue Reading]

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The Red Thread and My Child with Special Needs

There is a Chinese folklore, which tells about the connection of family members.  The Chinese say that there are invisible red threads that connect a newborn child’s spirit to all of the people that will be important in their life.  As the child grows, the threads shorten to bring these people closer together.   Parker’s… [Continue Reading]

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